← Return to Anyone DLBCL return 30 days after CAR T transplant?

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Profile picture for Lori, Volunteer Mentor @loribmt

@andreamimi6 It's wonderful for both you and your daughter that you can be together during this time. Who better to be the caregiver for your daughter than you. ☺️ But as a bone marrow transplant recipient, which is similar to your daughter's CAR-T in some respects, it's pretty rough on the caregiver with feeling a bit helpless at times. I watched my husband age while he was helping me.
Your daughter will have days of the proverbial "two steps forward and one step back" the next day. Slow and steady recovery is ahead. The first week or two are the hardest. So hang in there! We love getting updates ...we become a pretty tightly knit family on Connect. ☺️

Are you lodging nearby and then visit your daughter daily?

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Replies to "@andreamimi6 It's wonderful for both you and your daughter that you can be together during this..."

@loribmt
Yes,we are.
Today was not great for my daughter- lots of fevers and she needed a transfusion... all to be expected. I guess tonight they will be giving her steroids and another medicine. Poor kid...she is on a roller coaster ride.
I am not the sole caregiver..her boyfriend is helping and her older sister is coming next week- lots of love surrounding her 😍.