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@mkd54
What organs has the amyloidosis affected you? My heart and kidneys are affected so that is why I have shortness of breath. I also now have neuropathy so the bottom of my feet tingle all the time. When I did my 6 month dara-CyBorD treatment all I did was treatment, eat and sleep and was very weak.

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Replies to "@mkd54 What organs has the amyloidosis affected you? My heart and kidneys are affected so that..."

@sb428 Thank you for your response! My kidneys are affected. I am being monitored for heart and awaiting a heart MRI, but that it is 5 months from now. I have had other heart related issues for 19 years, so cardiologist is not sure if other issues are amyloidosis. Off and on neuropathy in hands and feet, but not very bothersome. I have completed week 6 of my 6 month treatment. I am noticing each week it takes me a little longer to “recover” from treatment. Is that how it was for you? So far I get a few bursts of energy each week to try and keep up with life, but less of those each week. I am 72 and thankful I am at an age and stage with less ongoing responsibilities!