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Anyone DLBCL return 30 days after CAR T transplant?

Blood Cancers & Disorders | Last Active: Jul 25 4:39pm | Replies (16)
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Profile picture for andreamimi6 @andreamimi6

Well,her appetite is off again but to be expected. She had a rough night with fevers and today her fever has come back and that is to be expected. There has been no emergency situation, the staff is on top of things.As a mother, it is just a comfort to be with her!

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Replies to "Well,her appetite is off again but to be expected. She had a rough night with fevers..."
Lori, Volunteer Mentor | @loribmt | Jul 24 8:28am

@andreamimi6 It's wonderful for both you and your daughter that you can be together during this time. Who better to be the caregiver for your daughter than you. ☺️ But as a bone marrow transplant recipient, which is similar to your daughter's CAR-T in some respects, it's pretty rough on the caregiver with feeling a bit helpless at times. I watched my husband age while he was helping me.
Your daughter will have days of the proverbial "two steps forward and one step back" the next day. Slow and steady recovery is ahead. The first week or two are the hardest. So hang in there! We love getting updates ...we become a pretty tightly knit family on Connect. ☺️

Are you lodging nearby and then visit your daughter daily?

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