← Return to Things just got worse. Diagnosis is now acute leukemia (AML)

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Profile picture for Lori, Volunteer Mentor @loribmt

@twitt1949 Glad to hear you're out of the hospital and your ticker is back to a regular rhythm. Do you need to be on Eliquis or any blood thinners for your A-fib?

Well, the bigger news is the AML diagnosis. The presence of blasts changed the diagnosis. Blasts are immature blood cells that normally are not seen in the peripheral blood. Meaning they don’t show up on labs. They are generally located only in the bone marrow where they mature into productive blood cells. With AML, these blast cells are able to proliferate out of control and eventually there are so many inside the marrow that they spill out into the blood stream. If not controlled, they eventually crowd out all the healthy cells. And obviously that is not a good thing.

So your doctor will be starting treatment which will destroy the rapidly dividing cancer cells. That will help reduce the current blast cell %. Repeated doses will then help to keep that population down. In my own experience at the time of my diagnosis, my blasts were at 85%. That means 85% of my blood was cancer cells and only 15% blood cells. My hemoglobin was 4.7. I’m sharing that detail to let you know this can be treatable. ☺️

Do you know if there were genetic tests run to see what mutations are involved in your diagnosis?

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Replies to "@twitt1949 Glad to hear you're out of the hospital and your ticker is back to a..."

@loribmt Thanks Lori, you have a way of giving hope. They took me off thinners because my platelets were so low. When I say I feel great, I mean better than I was but still have MDS issues and feel only about 90%.
Like I said she talked at least 30 mins. She went into detail what the cells are and aren't doing.
My son says he likes the idea we can now get treatment rather than just waiting and not doing nothing, waiting till it gets bad then do something. I don't know if thats a good thought or bad thought.
One question and it is probably too early and too broad of a question, after they start my chemo treatment, will I feel bad? Will I be able to live a normal life? How close do I have to stay by a hospital? Reason I'm asking is , one thing I'm afraid of is the middle of Aug both of my kids and their families have planned a camping trip that has been planned for over a year. Is this family camping trip thing out of the question or is it a wait and see thing? I just don't know what to expect after the chemo treatment.