← Return to Things just got worse. Diagnosis is now acute leukemia (AML)

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Profile picture for Lori, Volunteer Mentor @loribmt

@twitt1949 Well golly, that’s not the news you were expecting to hear, to be diagnosed with AML. Me either, not with your diagnosis of low risk MDS. But things can change unexpectedly and unpredictably with some forms of MDS.

I want you to take a deep breath because this was caught early. There are wonderful newer meds on the market that make AML for we older folks treatable. You didn’t remember the names your doctor mentioned. But if it’s a combination of two medications it’s most likely drugs such as decitabine and cedazuridine OR Vidaza and Venetoclax. There are other treatments as well but these are the more common. They are lower intensity chemotherapy drugs for older people where the tolerance for aggressive chemo wouldn’t be suitable.
Several members in the group have taken these combinations of meds for their AML and it’s quite successful for them.

I know you’re pretty rattled right now but these drugs can work to get you into remission. They may even help with all the symptoms you were having! We can talk more about all of this as you learn more from your doctor.

If we can, let’s keep all the conversations right here in this discussion you’ve started instead of posting a new one. That way all of the conversations will be cohesive so we can follow right along. Ok?

What would you like to know? When is she suggesting you start treatment?
Your latest blood work most likely showed evidence of blast cells. Do you know the percentage?

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Replies to "@twitt1949 Well golly, that’s not the news you were expecting to hear, to be diagnosed with..."

@loribmt Hi Lori. Yes my blasts 27 I think. I just got out of the hospital last week for 4 days with atrial fibulation which I think I had for a few years and didn't know it. Now they got my heart working ok, I feel great. I thought things were going great then this. My doc say she wants to get me on this new treatment immediately.