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With a Decipher score of 0.29 has anyone done Active Surveillance?

Posted by Miggie @miggie, 2 days ago

Has anyone done Active Surveillance with a 0.29 Decipher Score?

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Profile picture for Jeff Win. . .
Jeff Win. . . | @jbwmo | 16 hours ago
In reply to @miggie "His biopsy showed a 3+4 on 1 spot and there were 3 spots with a 3+3..." + (show)
Profile picture for Miggie @miggie

His biopsy showed a 3+4 on 1 spot and there were 3 spots with a 3+3 Gleason score. They did a biopsy on 12 spots.
The Decipher score came back Friday 0.29 on the 1 spot. At this time the cancer is not outside of the prostate gland according to the MRI and the Urologist. He is going to the best in Kansas City for a Urologist. His last PSA score was a 5.3 and it has gone up in the last 6 months. He is only 65. Jeff you are wonderful to reply I can’t thank you enough.

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@miggie
I went to KCUC for m issues and the team there did a great job. My Gleason was 5-3 and everything still in prostate. Had a Robotic removal 2 yrs ago and ended up with a few cells in the surgical margins. A year later started on Orgovyx and then 40 proton sessions started a month later. Surgery went well, Proton went well, Orgovyx went will with the normal fatigue issues. I will be off of the yearly regimen of daily Orgovyx at the end of July. My fatigue levels should ease in a month or so. PSA levels have been stable for the last 4 months at 0.04 so that is probably my nadir.

I just turned 70, tall and slender and in great health. Take several supplements and do lots of juicing.
Hope things go well with your family. Jeff

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punz | @punz | 14 hours ago
In reply to @keithl56 "@miggie I am in a similar situation regarding my biopsy (2 of 16 cores, a 3+3..." + (show)
Profile picture for keithl56 @keithl56

@miggie

I am in a similar situation regarding my biopsy (2 of 16 cores, a 3+3 and a 3+4 with 10% being 4) and am awaiting my Decipher score. My surgeon said that I may be able to do AS, but is actually starting a second phase of a clinical trial using aquablation which I may be a candidate for at Johns Hopkins. I believe that there are other centers with similar trials, maybe his in KC. Might be worth checking out. Only 2/3 in the trial get the aquablation with the remainder on AS to compare results.

The aquablation offers many advantages over RARP - not invasive (trans urethral), very little comparable side effects (ED, incontinence), shorter hospital stay. I'm just hoping that my co-morbidities don't disqualify me.

Good luck!

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@keithl56

Keep us posted with the aquablation trial, I am currently on AS and have a similar number(s) as you; my decipher test indicated low risk. FYI I had aquablation for BPH in January 2025

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Profile picture for punz
punz | @punz | 14 hours ago
In reply to @miggie "His biopsy showed a 3+4 on 1 spot and there were 3 spots with a 3+3..." + (show)
Profile picture for Miggie @miggie

His biopsy showed a 3+4 on 1 spot and there were 3 spots with a 3+3 Gleason score. They did a biopsy on 12 spots.
The Decipher score came back Friday 0.29 on the 1 spot. At this time the cancer is not outside of the prostate gland according to the MRI and the Urologist. He is going to the best in Kansas City for a Urologist. His last PSA score was a 5.3 and it has gone up in the last 6 months. He is only 65. Jeff you are wonderful to reply I can’t thank you enough.

Jump to this post

@miggie

I know it's a shock when you hear the word cancer the best thing you and your husband can do is educate yourself about prostate cancer (you have time). The numbers are similar to my numbers (I'm on AS), having a PSA blood test done every 3 or 6 months and an MRI done yearly is what most doctors recommend for monitoring.

You may want to review this website below or on YouTube and watch a few videos. I found the info very helpful
https://pcri.org/
Best of luck!

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