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Not Good News after prostate biospy when MRI didn't look too bad
Prostate Cancer | Last Active: 5 hours ago | Replies (316)Comment receiving replies
I’m sorry to hear what you’re going through. I’m only a year into it all myself and am 58. My biopsy results also showed cribiform patten, but only in one core. My understanding is that it is an indicator of aggressiveness. In my case, I was considering active surveillance, but the cribiform pushed me into needing treatment sooner rather than later.
I live in St. Louis but am from KC. I know it’s a hike from Topeka, but I would suggest continuing to make the trek to KUMC. Many guys also get opinions at different major cancer centers. There are lots of options to consider so it can be overwhelming. If you have a family member or close friend who can accompany you to appointments, that’s also helpful because there is so much information to consider.
I would assume they’ll want to do a PSMA PET scan. That and some other tests will play a big part in the eventual path you choose.
If radiation ends up being part of your treatment path, maybe there’s a way to do that in Topeka under the direction of a KU physician. That might be a good question to ask at some point.
Replies to "I’m sorry to hear what you’re going through. I’m only a year into it all myself..."
I should add that I don't mind the drive to KUMC, they have several clinics and all easy to get to. In late 60s I went out to LA and lived for 5 years, so used to traffic and still doesn't bother me. Straight shot down I70. Yes KUMC was also great with an ankle replacement I had done as well great with wife's breast cancer. Also the RO I worked with at the urology cancer center was great and always answered questions within hours. Somehow, I just got 2 bad draws on the urology surgeons and thrown in the dumpster for resident doing aquablation.
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I had it removed in Topeka on April 30th and then they cut me open again on May 1 at 2AM as an artery was bleeding. Two surgeries in less than 12 hours. Then about a week later they said I had a TIA. Kind of a rough time. Then when he was removing the prostate the surgeon fixed an inguinal hernia that I had since late 1980s and didn't bother me and I didn't want messed with, but they didn't ask- he just put in a mesh. I did all kinds of heavy weight lifting, never bother me prior to surgery. I knew about it, myself and PCP said if not bothering me leave alone, it wasn't that bad. Now the mesh he put in seems to have come loose and I have a bulge in groin. Looks like another surgery in near future?
I did try KUMC at first and the urology surgeon just would not answer my questions, so after a couple weeks I came back to Topeka. The Topeka surgeon has lots of experience with robotic, was responsible for bringing it to Topeka. He had done a urolift on me a long time ago. Has done over 1,000 radical prostatectomy with the Da Vinci system. I was a little disappointed with KUMC as 2 years ago I had an aquablation and found out after surgery a resident did surgery- not my doctor! Also, it didn't work and the doctor who was suppose to do surgery in first place said I needed a revision, I just said no and used Flomax. So I wasn't too happy with the urology department at KUMC. The doctor that was suppose to do the aquablation and the cancer doctor that wouldn't communicate were 2 different doctors.
Now they did wonderful with my wife's breast surgery care, couldn't have been better. But that was a different section of hospital.