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Lymphedema in legs

Heart & Blood Health | Last Active: May 12 12:50pm | Replies (149)

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@johnbishop

Hello @exislander, welcome to Mayo Clinic Connect. I have lymphedema in both legs but so far mine is controlled by compression socks. The swelling in my right leg would get worse during the day when the leg was not elevated. I don't know much about leg pumps but did find some information on their use.

Understanding Lymphedema Pumps
-- http://www.lymphnotes.com/article.php/id/406/

I'm tagging @lisalucier @sauvee @drueann @cindylb @geek_girl @amkaloha @jroberts87 and @barbarah to see if they may have some thoughts or recommendations for you.

Have you seen a specialist about the constant drainage in the toes? I have no medical training or background but it seems there might be other serious related issues causing the drainage.

John

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Replies to "Hello @exislander, welcome to Mayo Clinic Connect. I have lymphedema in both legs but so far..."

Thanks John. Have not found a specialist regarding the toe drainage. Occupational Therapist and wound care people’s directives are to tightly wrap toes and legs which supposedly will control swelling but the problem is the drainage. After several hours, the toe wrappings and top of foot will be soppy with lymph fluid. Extended periods of time wrapped tightly, wet, dark and no air results into a fungus breeding environment. Now I am treating the toes and foot without the use of wrappings while taking antibiotics. What I need is a specialist who knows how to repair and seal off this constant drainage. It is especially bad when I put weight on the foot . It’s like water in a balloon; put pressure on the balloon and the water squirts out.