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Breast cancer with bone mets: Reduced treatment & living life
Breast Cancer | Last Active: 3 days ago | Replies (20)Comment receiving replies
@mawmaws I was diagnosed with ILC, Er/Pr+, HER2- which I found out on January 21, 2026 following a biopsy of a small mass in my right breast. Following a FES PET, I was told on March 31, 2026, that the BC had metastasized to my bones. Whereby by mastectomy was cancelled.
I was placed on Tamoxifen to my hormones from feeding the cancer. This is not the ideal one for my type of cancer, but used because I foolishly had hormone pellets inserted by a Naturopathic MD. So you have to wait for my body to eventually rid itself of the hormones from the pellets. I will eventually be placed on a different AI. I do not know which one. I am taking Verzenio to stop the cancer. I take 100 mg x2. I tried 150 mg x2 was toxic, but it “terrorized” my liver. I’m now back to normal on my blood tests for my liver function, back on the lower dose.
Replies to "@mawmaws I was diagnosed with ILC, Er/Pr+, HER2- which I found out on January 21, 2026..."
@denisedm2026 I know a lot of people is having bad side effects from the tamoxifen. I don’t know why they canceled your mastectomy? I found out over the last few years talking to other women & of course my own situation that the best thing to do is take both breasts off And don’t replace with implants which caused more issues and a different hypo cancer. because cancer comes from there and your ovaries the best thing you can do is get rid of things that make the cancer worse. I think they like to make us sick by giving us bunch of medication they caused the side effects to lead to even more medication’s watching us dwindle away it’s very sad those people line their pockets with money because of people like us desperate to live. if I had listened to my gut and not my surgeon and just had my breast removed, I wouldn’t be in the situation. I’m in now more than likely the cancer would’ve been gone. instead, I listened to her, got a lumpectomy removed seven lymph nodes under my arm. She left me with a positive margin on top of seeding it under my arm from cutting the cancer out and going under my arm where there was no cancer leaving cells so it grew under my arm and spread to my spine.
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@denisedm2026 Can I ask about the Verzenio? I was going to try it after trying many different hormone blockers, but then my Doc said it MUST be taken with a hormone blocker, that the FDA has only approved that. I told her I will not go back on AI's, Fulvestrant, or Tamoxifen because of awful side effects. So now I'm not on anything for BC.
I am thinking of getting a second opinion at a different Oncology treatment Ctr.
Thanks.