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what to expect when starting prednisone for PMR
Polymyalgia Rheumatica (PMR) | Last Active: 10 hours ago | Replies (58)Comment receiving replies
@csimmonds No rules, it is all up to you. No one, MD or not seems to know the path or reasons.L
Yes, love water exercises, also, hot tub. I self tapered with agreement from Dr. so I stayed on a dose until I was pain free for at least 2 weeks.
My go to method is 15 mins of light exercise in bed before getting up. Saved me when I was crippled with PMR early on. Still do them to this day 2 1/2 yrs later. Mostly do them to prove to myself “I’m back!”
Now to address your question, I did not have a time off meds like you. However, I am on the biologic Kevzara and did go off for 2+ months, my blood work came back with increased CRP and SED numbers. DR. had me go back on Kevzara. At no time was I in pain, or discomfort.
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@tweetypie13 I appreciate your response and agree, particularly with the patient leading the path. That is what I like about my new rheumatologist. He understands this and listens to my experience. I will be staying on 2mg until our next visit and we will plan from there. The 'we' is important to me. He talked about long term options and mentioned Kevzara but said it could be contraindicated if I had diverticulitis. Recently a scan showed I have a mild case. Since Kevzara can cause bowel perforation it might not be right for me. However GLP-1 might. I have enough other conditions that it is like going down a checklist to see what is ok. Fortunately I am very comfortable with this physician, his knowledge of PMR and his respect for the patient. As you know it is hard to understand the incredible pain with PMR. Even when having a bad time I look ok at 7 in the evening. That morning I might have been crying as I try to get out of bed. Then I dread going to bed. When I was in pain I did some stretching before getting out of bed but it sounds like you do more. What exercises do you do in bed that help? I think many of us could learn from your experience.