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DiscussionLiving with Parkinson's Disease - Meet others & come say hi
Parkinson's Disease | Last Active: 2 hours ago | Replies (1002)Comment receiving replies
Replies to "@hopeful33250 Buenas noche. Gràcias por contestar. De momento, lo único que he tomado ha sido el..."
@agusti
I see that your next neurology appointment will be in December. Is it possible to contact the doctor's office before your appointment to explain what is happening? I have found from my own experience that Parkinson's symptoms are worse when I am tired (later in the day). Perhaps a different medication might be helpful. Have you used Entacapone? It helps the Sinemet to stay in your brain longer. Perhaps you are already taking this?
Exercise can be very helpful in controlling PD symptoms. Are you involved with a regular exercise program, or have you had physical therapy that specifically addresses Parkinson's?
You mentioned that you wish you could talk with your neurologist when these involuntary movements begin. Is it possible for a family member to take a video (perhaps with their phone) to record what these involuntary movements look like? This might help your neurologist better understand what you are dealing with.
These are just some suggestions from my own experience. I am not a medical professional, just a patient like yourself. I look forward to hearing from you again. Will you continue to post with your questions and concerns?
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@agusti
Ongentys is pretty strong, maybe too strong. Look into Comtan to extend the effect of Simenet. A dopamine agonist such as Requip will help with movement. These all can be taken together.
I find that getting input from multiple neurologists is helpful if possible. I am not a doctor, just sharing my experiuence taking these drugs.