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Essential Thrombocythemia: Looking for information and support
Blood Cancers & Disorders | Last Active: 12 hours ago | Replies (696)Comment receiving replies
@garyr443 My Doctor tells me that it is not cancer. I dont think anyone can decide. Her reasoning is that it is not curable but it can be managed with medication. I take hydrea 3 days a week 500mg and my plates were 295 this week. I still have random symptoms but they come and go. The highest mine ever got were 651 I also have the Jake 2 mutation as well as ET.
Replies to "@garyr443 My Doctor tells me that it is not cancer. I dont think anyone can decide...."
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@vickieannb57 That it can be managed with medication does set ET apart from most cancers. Even with medication (and I can't think of any that exist for cancer), the disease will progress until you die. My sister tried everything for her breast cancer, over a period of twenty years, and still died from it at 58. So, agreed on that. If ET is a cancer, it is a cancer of the blood, as most sources say. None us is having surgeries or the removal of any body parts, as would be the case with cancers. So, maybe it makes better sense to call ET a blood disease.