@minaishak Hello. No I have not had Everolimus. Probably they will use Cabometyx until it stops working, which is usually about the time that I am at now (12-14 months).
I had a distal pancreatectomy with gallbladder and spleen removed. It was not at Mayo but my local hospital.
Blood sugar is usually normal until I do anything active for more than 30 minutes and then it drops quickly. It also drops early morning and early evening then spikes after eating. I feel dizzy often when walking but am almost used to it by now.
I have several doctors- my surgeon I no longer see and an endocrinologist who said he thought I would be dead by now. Currently no oncologist as the last two both left for other positions and they just found a replacement. I have an appointment with him in a couple weeks after another PET. From his resume I’m not even sure he’s an oncologist let alone a NET specialist.