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Dad had ET many years ago, developed an aortic aneurysm. It was fixed with an transcath procedure. Not sure what yr doc is recommending as the best procedure of you, but Dad did just fine, and he was out of the hospital in a day or two.
It's interesting that JAK2 is related to aneurysms. Dad died 20 years ago, before they had identified mutations, but makes me wonder if that was a factor.
I have CALR mutation. My mitral valve prolapse got worse after ET onset, but no doc has pointed to a connection, probably because neither are real common, and certainly not together.
Docs are recommending open-heart surgery to fix valve. Lots of preliminary tests first. I've been in limbo since May with the testing, but I find the test period gives me room to absorb all the info.
It is real stressful at times, so I get it!
Wishing you the best. Keep us posted!
Replies to "Hi @virginiafizz Dad had ET many years ago, developed an aortic aneurysm. It was fixed with..."
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@nohrt4me Hi, thanks so much for the information, it's so helpful to learn of other people's experiences and how they moved forward. I live in a small town in New Zealand with limited medical resources so I find this group and Google a massive source of information. As more people share their experiences of ET and JAK 2, it would be great to find a common denominator that triggers them. Is is environmental, is it childhood medical problems/flus etc. Why is it more common over the age of 50. So many questions. Interesting that your father had and you have ET. When I asked if it was inherited, as I thought I would need to tell my family, was told no. Again shared experiences so helpful.
Good luck with your journey, please keep us posted on your progress.