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Anyone have side effects after Lanreotide injection?
Neuroendocrine Tumors (NETs) | Last Active: 6 days ago | Replies (99)Comment receiving replies
I am new to this support group, been diagnosed with 2 typical neuroendocrine tumors in bilateral bases of my lungs and many(too many to count per cat scan report) scattered throughout lungs. Gallium PET showed uptake in bigger bilateral basilar nodules which they biopsies a few weeks ago hence the diagnosis confirmed. Remains to be only in lungs right now. Seen Oncologist today going to start Lanreotide injections next week monthly have had this chronic cough told it was Asthma for 30 years but got increasingly worse cough in 02/2026 to point where I was passing out esp with work and talking on phone with my job for 7-8 hour/day. Appreciate all the reviews of side effects will keep you posted how has the medication helped with your coughs
Replies to "I am new to this support group, been diagnosed with 2 typical neuroendocrine tumors in bilateral..."
Hello @reinmac, and welcome to the NETs support group on Mayo Clinic Connect. I'm glad to hear that your coughing problem was correctly diagnosed. I hope that with the right treatment, you will begin to feel better.
On Mayo Clinic Connect, we have a separate discussion groups dedicated to NETs in the lungs. You will undoubtedly find it helpful to meet others who have a similar diagnosis.
Here are some links to those discussions:
--I am 75 and have carcinoid tumors NET in the lungs
https://connect.mayoclinic.org/discussion/i-am-75-and-have-carcinoid-tumors-net-in-lungs/
--Anyone with lung NETs experience weight loss?
https://connect.mayoclinic.org/discussion/lung-carcinoid-weight-loss/
--Lung NET with COPD
https://connect.mayoclinic.org/discussion/lung-net-with-copd-treatment-options/
I am tagging some Connect members with lung NETs such as @emilyfaith, @lisaonthegoco, @jessie1990, so that they can share their experience with you.
Are you currently seeing a NET specialist?
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@reinmac Hi and welcome to Mayo Connect. Sorry to hear about your diagnosis. It seems like you have a plan moving forward. When do you start the shots this week? Is your oncologist a NETs specialist?