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Profile picture for sarahdemare04 @sarahdemare04

I shared with my dad today that I joined this community and he was happy to hear it. It takes a village. He understands that his team is essential to his health and healing. He was wondering if anyone has any tips for the Myfortic and diarrhea. He is drinking a lot of water. He has inspired me to drink as well! But does it get better and better or is this possibly a new reality?

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Replies to "I shared with my dad today that I joined this community and he was happy to..."

@sarahdemare04 I'd advise you too tell his team about his bowel problems immediately and tell them a couple people in this group mentioned it could be CellCept or Myfortic or a possible infection. They are both anti rejection pills. I take CellCept and Tacrolimus for anti rejection. My first 4 weeks after I was discharged from the hospital I did 2 or 3 blood draws/labs a week. Then I was completely discharged to go home and now once a week labs. So it may take numerous tests to see if his levels go up or down or fluctuate. It concerns me because diarrhea can make the body really dehydrated and really hard to catch up just drinking water. Especially in an older person's case. I pray for a good outcome. Tell your father he's not alone and it's good too ask questions.

@sarahdemare04 What do his doctors say about the diarrhea? They will want to know how many times per day. Keep track.