@cath50 With constant needs, changes and frustrations I can only tell you I rotate between anger, hopelessness and acceptance. If the first two ever overcome the third I will have to make different arrangements, but so far I am able to have moments of the first two, followed by accepting that caring for him is my purpose right now. I have let out loud sighs, and then had to explain to him I am frustrated by his symptoms, which I know are also frustrating for him, and not frustrated with him personally. It's a reminder for both of us when I say this. Wishing you well and peace of mind, which is hard to maintain in these situations!