← Return to Reactions when you tell people you have Parkinson's Disease?

Discussion
Comment receiving replies
Profile picture for sassytwo @sassytwo

@206452751079 me too. My good friend’s husband has Parkinson’s and I want to learn more about the disease and how to support both of them. This past year I have noticed great changes, cognitively and significant weight loss but improving with new medications. I suggested twice that my friend may benefit from a caregivers support group or that Her husband might, but she is not interested. I asked if she would mine if I looked into it for myself so I could better support them both. Mostly, I plan caregiving escapes and listen and find that her husband and my friend too, enjoy when I stop in . We live in the same condo building and have mutual friends. Our small gatherings seem to be a comfortable and enjoyable outlet for socialization for both —with my friend being able to retreat home or bed when tired. Or he can stay home and my friend can come as close by. It is difficult to leave him for long periods. I know she gets so very frustrated—even as she knows what is going on. He was told he can no longer drive and has lost so much ability to complete tasks that used to be easy peasy. Once a B52 pilot. still engaging conversationist and wonderful quick and quiet humor that I find enjoy immensely. He feels good when he can help me in anyway— so suggestions on ways to set him up for success to be useful appreciated. They are planning a 10 day European river cruise and I know their is apprehension if this will be doable— cane but I think will need a walker. I suggested a porter andUS airport had wheelchair etc. They fly 1st class and are experienced travelers. Suggestions! ??

Jump to this post


Replies to "@206452751079 me too. My good friend’s husband has Parkinson’s and I want to learn more about..."

@sassytwo WOW! you're a great friend--keep it up be very patient. when you say he feels good helping you not sure if that is handyman type help. I have early stages of Parkinsons, and I told my sons don't ever stop asking me for help. so, my son in another state calls me a lot and asks my advice on home improvement stuff all the time and I love it. I'm not doing any of the work I'm simply giving him advice on drywall or plumbing etc.. even if you have a sister, brother or friend that's not nearby tell your friend--"hey my sister that lives in ____ has an issue with her sink do you know what that could be or how to fix it" and then follow up and tell him thanks that worked great. If his wife has a favorite candy or drink or whatever give her the occasional atta boy. keep being a great friend