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What was your experience on Kevzara?

Polymyalgia Rheumatica (PMR) | Last Active: 16 hours ago | Replies (179)

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Profile picture for tweetypie13 @tweetypie13

@kjoed53 oh so oooo unfortunate.
We live in so much discomfort, and their staff is probably overwhelmed and doesn’t feel the individual patient need.
My first option would be go into the office and stand there. I’m Taurus the Bull.
And yes, meantime look for another Dr.

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Replies to "@kjoed53 oh so oooo unfortunate. We live in so much discomfort, and their staff is probably..."

@tweetypie13
Not 5 minutes after replying to you, my rheumatologist office called me. The receptionist was very upset thinking she messed up until I told her that it was the part time receptionist who I spoke with last week and again on Monday when I went to the office to pick up some other paperwork. She was the one who didn't pass the Cigna information to the doctor. I've had two calls since and a message in my patient prescription portal that the script was finally sent to the specialty pharmacy. I'll make sure the doctor knows that I'm not happy when I see him in 3 weeks. It's a very busy office and the part time receptionist is definitely not organized enough to multitask.

@tweetypie13

As long as you just stand there-that is okay and you don't charge like a bull.

Did you see the bison at Yellowstone National Park charge that 60 year old man and throw him 10 feet into the air??? The man survived with multiple broken bones and was in the hospital recovering. Emergency care givers arrived at the scene within minutes.

I worked as a nurse for 10 years while still having active PMR. Eventually, the pain got the better of me so I retired. I was a bear sometimes to my coworkers because of prednisone. I also had many demands placed on me from patients who didn't seem to appreciate that I was in pain too. I dutifully retrieved their pain medications as soon as I could. I understand the frustration with pain so I tried to make sure patients had what they needed. It seemed like every patient had many needs. I think we also need to cut health care workers some slack.

I had a rheumatologist tell me that he understood how I felt at one of my follow-up visits. I respected the doctor because he seemed very knowledgeable so I asked him how he knew so much. He said that he had the same autoimmune condition that I had. Then he said the visit was about me and not about him.