Anybody had spine surgery? What type and why?

Posted by mawmaws @mawmaws, Apr 9 11:23pm

I would like to talk to you and said you had 10 spine surgeries?

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Profile picture for lchop @lchop

@marcd2k
PT is absolutely necessary after spine surgery. You need to build your core muscles. I had a TLIF, 5 years ago, which failed horribly and done @ HSS in NY.

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@lchop
My TLIF (L2-L5 was done at HSS in 2021. Never been the same since. Had a major bleed post op, a week in the hospital then 3 weeks in a rehab. Sorry I did it because the pain is worse now postoperative and revision surgery is not really recommended. Good luck. I've never seen anyone post on this subject. Good luck to you!!

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Profile picture for albertlc13 @albertlc13

@marcd2k Marc, thank you SO MUCH for all the GREAT info...I hope someone was as helpful to you when you first went through it. Thank you again!

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@albertlc13 Good morning, Albert. I wanted to follow up with you regarding your surgery. Back in April you said you were having surgery in about 2 months. Have you had the surgery? If yes, how is everything going so far?

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Profile picture for marcd2k @marcd2k

@albertlc13 Good morning, Albert. I wanted to follow up with you regarding your surgery. Back in April you said you were having surgery in about 2 months. Have you had the surgery? If yes, how is everything going so far?

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@marcd2k I don’t know if this message was for me or not? I did have a spine surgery in April because the breast cancer had went to my spine. It was over six hour surgery I’m doing OK my surgeon was great he said it was one of the most radical surgeries ever done it was pretty extensive. Thanks for asking if this message was for me

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Profile picture for @lchop55 @karentheo

@lchop
My TLIF (L2-L5 was done at HSS in 2021. Never been the same since. Had a major bleed post op, a week in the hospital then 3 weeks in a rehab. Sorry I did it because the pain is worse now postoperative and revision surgery is not really recommended. Good luck. I've never seen anyone post on this subject. Good luck to you!!

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@karentheo sorry to hear your spine surgery didn’t go well I hope you’re doing OK? My spine surgery I had in April turned out OK so far I had a great surgeon. where did you have yours done? I didn’t like the hospital I was in but I went there because the surgeon was supposed to be one of the best & so I went to Barnes in St. Louis that’s where he said he could do it.

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Profile picture for yaaqovk @yaaqovk

I had spinal decompression surgery on January 27th, 2025 to relieve the pain, etc. of lumbar spinal stenosis. Now, about 17 months later, while the pain has lessened, it has not gone away and I walk only with a walker. What I did not have pre-surgery are: numbness in my right lower leg, urinary incontinence, steady ED, and worst of all, kyphosis of my lumbar spine, making it impossible for me to stand fully straight without pain, to stand at all for more than, say, one minute, or to walk unassisted without excruciating lumbar pain that radiates from my right groin area down to my right knee. The orthopedist who referred me for an MRI In May 2026 says the most likely treatment will be a fusion surgery (L2-L5). I'm an 81.5 year old male, and I'm terrified . Physiotherapy has helped, but not enough.

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@yaaqovk so sorry to hear that your surgery didn’t go well believe me I know what that pain is like and it is awful! Where did you have your surgery? My spine surgery April 13 went good I had a great surgeon from what I understand he fixes a lot of other surgeons mistakes. I had a very radical surgery from breast cancer gone to my spine. the surgeon said it was one of the most radical he’s done. I had a fusion from T3 -T9 also removed 3 parts of lamina in my spine, 50% of my T5 and T6 vertebrae, 3 V-shaped bones with cancer, had to fill-in with puddy, two rods, six screws, had to make flaps 10 cm x 5 cm for the muscle in my back. Other stuff was done, but just thought I’d give you an idea of what I went through.

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Profile picture for mawmaws @mawmaws

@marcd2k I don’t know if this message was for me or not? I did have a spine surgery in April because the breast cancer had went to my spine. It was over six hour surgery I’m doing OK my surgeon was great he said it was one of the most radical surgeries ever done it was pretty extensive. Thanks for asking if this message was for me

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@mawmaws Hello, I was actually writing to another member named Albert, but it can get confusing with the different screen names showing up for the sender, the comments, and replies.

I'm glad to hear you are doing well. There was a question asked last week on this discussion board regarding people that had successful spine surgery, instead of only talking about the problems after surgery. It is always good to hear both sides, and to know these surgeries can be successful is comforting to an extent.

Have a great weekend!

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Profile picture for albertlc13 @albertlc13

@marcd2k I'm about to have my first fusion surgery in about 2 months. I am terrified of the recovery and for the EXACT reasons you detailed in your earlier post. The whole BLT (I totally understand) but dang, how do you go to the restroom without bending and twisting? I went out this weekend and purchased a "lift recliner" in anticipation of my recovery but there is still somewhat bending getting in and out. I'm sure there is somewhat of an exception, but I haven't heard from anyone that really let's us in on the BLT compromise. Can you elaborate a little on the bending and twisting? I'm good on the lifting part. Thank you in advance!

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@albertlc13
The BLT problem and going to the bathroom can be fixed but lots of pre planning must be done. I found the best tools needed are as follows.
Install a toilet bidet or a poop washer. They are easy to purchase from Amazon and install by yourself or just hire a plumber. Please look into it as it is a game changer.
The second thing is a toilet paper wrapper on a metal kind of hook holder. I had never seen or hear of one prior to my T 10 to pelvis fusion. It was introduced to me by my OT at UCSF spine center. Very portable and useful during the first 6 to 8 weeks. I hope this helps.

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I had anterior spine surgery in 2022 for a herniated disc that was pressing on the nerve. I also had a severe case of sciatica on the left side, which went down my spine and the back of the left leg. I asked the surgeon to PLEASE get rid of that awful sciatica during the surgery. He said he would try. After surgery, I still had the sciatica, which was most disappointing. I still suffer with this today, 4-1/2 years later. No other surgeon can ever go back in there to do ANY back surgery because this surgeon fused my back. This is the downside of allowing a surgeon to do a fusion. I did not agree to it as I was asleep. He did this on his own. Needless to say, I would not trust another back surgeon even though I cannot ever have any further back surgeries. It is disheartening to know that I have to live with this severe sciatica for the rest of my life. Why don't patients have rights?????

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Profile picture for mawmaws @mawmaws

@yaaqovk so sorry to hear that your surgery didn’t go well believe me I know what that pain is like and it is awful! Where did you have your surgery? My spine surgery April 13 went good I had a great surgeon from what I understand he fixes a lot of other surgeons mistakes. I had a very radical surgery from breast cancer gone to my spine. the surgeon said it was one of the most radical he’s done. I had a fusion from T3 -T9 also removed 3 parts of lamina in my spine, 50% of my T5 and T6 vertebrae, 3 V-shaped bones with cancer, had to fill-in with puddy, two rods, six screws, had to make flaps 10 cm x 5 cm for the muscle in my back. Other stuff was done, but just thought I’d give you an idea of what I went through.

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My surgery was 27 JAN 25, and I'm still walking with a walker, still having
pain and complications.. thanks for asking.

Take it easy, but TAKE it!

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Profile picture for mawmaws @mawmaws

@yaaqovk so sorry to hear that your surgery didn’t go well believe me I know what that pain is like and it is awful! Where did you have your surgery? My spine surgery April 13 went good I had a great surgeon from what I understand he fixes a lot of other surgeons mistakes. I had a very radical surgery from breast cancer gone to my spine. the surgeon said it was one of the most radical he’s done. I had a fusion from T3 -T9 also removed 3 parts of lamina in my spine, 50% of my T5 and T6 vertebrae, 3 V-shaped bones with cancer, had to fill-in with puddy, two rods, six screws, had to make flaps 10 cm x 5 cm for the muscle in my back. Other stuff was done, but just thought I’d give you an idea of what I went through.

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@mawmaws I had my surgery at Hadassah Ein Karem Hospital in Jerusalem where I live..I got an MRI this May and need to consult with the referring orthopedist to determinecwhat comes next. My main problem now is lumbar spine kyphosis.

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