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SIBO…did it ever go away?

Digestive Health | Last Active: 5 days ago | Replies (94)

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@sikntired Thanks! Yes, while in the past I steered clear of AI, now I am less leery of it because of the new feature of citations with links to sources. And yes to a multi-pronged approach to dealing SIBO, etc. Yes to doctors and diagnostic tests, as the latter provides useful information. Yes to dealing with issues in a holistic way (e.g., nutrition, medications, supplements, pelvic floor therapy, bowel training, biofeedback, hypnosis) and experimentation. Yes to consulting patient forums like this one for ideas and comparing notes. I'd also like to say that at some point maybe one needs to accept that one might never be "cured." My goal at this point is a normal life, where I don't have to structure every aspect of my life around this thing. After 2 years, I've mostly achieved that. Another thing I notice in these forums is that many people don't pay enough attention to the damage that SIBO might have done to your gut lining. In my case, after I did have an endoscopy I was diagnosed with ASID (acquired sucrase-isomaltase deficiency) I went on the special ASID/CSID diet and it made a decisive difference. It is NOT the same as FODMAP and if you have ASID, FODMAP won't help you. Your gut literally can't properly digest lots of foods permitted on FODMAP, though there is some crossover.

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Replies to "@sikntired Thanks! Yes, while in the past I steered clear of AI, now I am less..."

Truly you are an INFORMED patient. We have to double check what the MDs
tell us at least, and to our ability. My PCP - when I complained about
fatigue - looked at the labs and said “Well your hemoglobin is normal so
you’re not anemic”. And she was right. But on the same labs my Iron sat %
was 19.5, normal being 20 to 50! No thank you. Then I found other things -
like my iron molecules were not BINDING well to Transferrin which delivers
the iron to our cells, essential to creating blood. If low also will sap
out iron stores in ferritin. It gets blocked in, not allowed to move around
in blood stream. When you mentioned CRAMPING, I thought of my Crohn’s
Stricture, an intestinal narrowing that prevents much fibrous food from
passing through. The food build up and can for forward to bowel despite
peristalsis - so it can’t go back or forward. It looked at AI for Sibo with
which I’m not familiar like you are but it did say the Sibo doesn’t create
strictures, strictures create Sibo symptoms. Which might say that dealing
with a stricture with anti inflammatories or even surgery might alleviate
Sibo. I’m Not a doctor. Just an observer. PS I have bile acid diarrhea all
the time (used to) but QUESTRAN STOPS IT TOTALLY for many. Good luck.