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Hello tburd, I'm really not understanding the term "real world." So, I'll move past it.
The point I'm trying to make I feel is a good one. Whether everyone is in agreement is another story? Some people do not like change and I understand that. And I'm aware radiation and chemo treatments are just that.
My thought is that people who have been diagnosed with HPV Cancer are different and unique. Our cancers are a result from a sexually transmitted virus 16&18. Yes, it is very rare to contract the 16&18 non sexually, but it is still mostly sexually transmitted. That being said, I'm sure there are many people apprehensive of signing up and putting forth a question due to being concerned of the putting themselves out there. I know they don't have to use their real names, and I know they don't have to post their pics. But, nevertheless there's a fear. I think if they knew they were talking to people in their same shoes, maybe they'd be more brave and forthcoming? I have a 9" scar along the side of my neck that I'm not too proud of. It's a symbol of me doing things I shouldn't have been doing. My family doesn't know what the scar is from and my best friend doesn't know what it's from. You may have no problem with sharing with whoever. Not all people are the same and not all people are so understanding. This translates to the blog, I honestly believe there are many out there that want to ask questions but don't due to fear.
Second point, HPV Cancer patients on the Mayo Blog shouldn't have to search for HPV Cancer comments? Like myself when I first joined up. That goes for my wife as well when she first started searching for HPV cancer answers? I think there are enough of us out there now that we could fully benefit from our own category making it much easier on everyone. I don't expect you to agree, but I have enough agreement already that proves I'm not the only one wanting the change.

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Replies to "Hello tburd, I'm really not understanding the term "real world." So, I'll move past it. The..."

@harleytiger sorry about the confusion. I merely meant that I understand people being hesitant to put it all out there, face to face, whereas you can keep your anonymity in this virtual space. I understand your point, and it appears many others agree. When HPV was first determined to be a cause, I took offense at the notion that I had done something illicit, insinuating that I deserved the outcome. I would not have likely shared that information. Twenty years has given me enough time to reflect on what is important, so I am less concerned about others' opinions. Not everyone will be of the same mind. That said, I worry that as the groups divide, getting information to everyone concerning treatments for both the cancer and aftereffects will become more fragmented. Maybe the monitors have some suggestions on how this can be avoided.