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Anyone with JAK2 mutation also dealing with aortic aneurysm?
Blood Cancers & Disorders | Last Active: Aug 21 4:38pm | Replies (18)Comment receiving replies
Good morning, @virginiafizz
Thank you for posting this new discussion about the possible link between the JAK2 mutations and aortic aneurysms. You have a very astute doctor to have picked up on the symptoms and to be up to date with the potential correlation between the two health conditions.
What are the suggestions for treatment of the aortic aneurysm at this time?
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Replies to "Good morning, @virginiafizz Thank you for posting this new discussion about the possible link between the..."
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@loribmt
Hi, my doctor said if the scan showed there was an aortic aneurysm they would see how advanced it was. If it was in the early stages I would need to have regular ultra sounds to measure the size of the aneurysm. If it is advanced it is life threatening and I would need a major operation that would require a stent being placed in the aorta to strengthen the wall of the aorta. Hopefully it won't come to this and as she said some people's aortas are closer to the surface and that is the reason the pulsating is more noticeable. I havè the ultra sound scan on 3 August so can give an update after this.