← Return to Anyone else feel Isolated and not go out due to chronic pain?

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Profile picture for snu @snu

Life sure is hard.
You say that most doctors fully understand....I am glad you have found it that way.
In my experience, it is the complete opposite .... most have no clue of how hard it is.

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Replies to "Life sure is hard. You say that most doctors fully understand....I am glad you have found..."

@snu Over the last 4 years I have had Covid twice and 2 other viruses. Each brought a fever of about 102 at the highest. During the fever days, my peripheral neuropathy symptoms were gone. Each time I had a fever, no neuropathy!!!! The 3rd and 4th time I was ready for the fever and the neuropathy pains leaving. I have mentioned this to several doctors, and they have a puzzled look. Of course, when my fever broke, neuropathy pains returned. You would think doctors would try to determine what stops the neuropathy pains. They could care less. The fake solution industry is making billions with no cures. Why rock the boat?

@snu agree with you. I have spinal Adhesive Arachnoiditis, & had it for 25 ? Years. The pain is so severe... Finally got some Dilaudid, but it doesn't help that much. I also am fused from C3 thru my sacrum & have a permanent suprapubic catheter with chronic drug resistant infections... I am often in hospital for week of IV's.... Since my kidneys, aren't great, and i am so drug resistant, i wonder how long i'm going to last. I am alone, no family. Know there must be some empathetic docs, but i never seem to get one. Lot of them don't know about my DX, or just tell me to take steroids & since i was an RN, they let me doctor myself, or i am stuck going to extremely over crowded ER's which are terrible here, in Phoenix area Think the empathetic docs have all left this part of the country, too many people & not enough doctors