What type of encephalitis? Autoimmune, limbic, or encephalopathy?

Hello @techi, that's an interesting question you posed. I did run across the story - "Mayo Clinic unravels a mystery disease for Minnesota lawyer" that may shed some light on your question:
https://medicalxpress.com/news/2015-03-mayo-clinic-unravels-mystery-disease.html
John

John thank you for that website. I read that story and its so interesting. I have a neurologist at the mayo clinic and i feel shes knowledgeable but i know that autoimmune encephalitis is not her area. I know it only Dr Britton because i was reading is bio. I have had so many neurologist and all of them i have disgreed with that why i had to have a second opinion and all the symptoms that are described as symptoms i have had and still dealing with. And i know these doctors here know they misdiagnosed me because they are on pins and needles and the hospital i was going to my insurance is dropping them . Well that doesn't sound good and 600 doctors are going to lose my insurance carrier which is there main revenue. So i know deep down inside thats what i have but the neurologist at the mayo clinic said i had it previously but it not currently showing and Dr Britton said sometimes all you test may come up normal but you still have it. Im truly blessed to be alive and i just wish he could read the reports without offending anyone. Ive been goiing through this a long time and when you finally see someone who knows what to look for gives you so much relief that it wasn't in your mind. And the neurologist im seeing said you might have to except it. So l am suppose to have my PET done and l have already seen 2 psychiatrist and when l come back they want me to see another. And they want to test me for dementia because it runs in the family, which Dr Britton said sometimes they will think you have that also. And l just can't keep coming to Minnesota. So l really don't know what to do. In just 3 months l have had more positive results since 20yrs and in 3 days more understanding in autoimmune encephalitis that its a disease not a mental condition something l always felt inside. Thanks John

Hello @techi, I'm so sorry you have to go through such a tough situation. I'm hoping they come up with some answers for you. Please stay in touch and keep us updated. Keeping you in my throughts and prayers.

God Bless...

John

I have been told I have autoimmune lambic encephalitis. But I'm not exhibiting common symptoms. The level of antibodies is high but not high enough I guess. I'm happy but unsure if I should pursue treatment.

That is limbic

Very interesting article. Thank you.

Hello @soccerchick, I think it's difficult when you are looking at rare type health problems like yours and trying to decide what to do. Are you able to get a second opinion? I did find a little information that may be helpful.

Paraneoplastic syndromes of the nervous system - Mayo Clinic website discusses symptomes and possible treatments:
http://www.mayoclinic.org/diseases-conditions/paraneoplastic-syndromes/home/ovc-20315084
Oxford Academic - Brain - A Journal of Neurology articles:

"Paraneoplastic limbic encephalitis: neurological symptoms, immunological findings and tumour association in 50 patients"
https://academic.oup.com/brain/article/123/7/1481/380251#
"Treatment-responsive limbic encephalitis identified by neuropil antibodies: MRI and PET correlates"
https://academic.oup.com/brain/article/128/8/1764/481343
Limbic Encephalitis and Variants: Classification, Diagnosis and Treatment by Erdem Tu¨zu¨n, MD, and Josep Dalmau, MD, PhD:
https://www.researchgate.net/profile/Erdem_Tuezuen/publication/5991390_Limbic_Encephalitis_and_Variants_Classification_Diagnosis_and_Treatment/links/0a85e53bfa4dab60af000000.pdf
John

Yesterday l was telling my daughter about what the internal med doctor at the mayo clinic told me, she said you were suppose to have an ultrasound in Oct 2015 to see if what you were going through had to do with your liver or autoimmune disease. You know everything is coming to the surface and its all in my favor. And now my insurance wants me to send them copies of my recent test. I showed my husband and l told him l never heard of that before and if they want it so bad they can get it. I can't wait until next week when l see my general practice doctor l wonder what he will ask for. When l went to see his PA last week we were updating my allergies again and she told me it goes directly in the hospital system l told her it doesn't so anyway l was put on a new high blood pressure med in 2015, they prescribed me one with a water pill. I made it clear to them l can't take it with a water pill and its still on my hospital record. Even the pharmacy know l can't take it. I don't know if this is something new but its very dangerous so you always have to be on top of things. Thank God my memory is getting better. I am working on it everyday and l know the best is yet to come.

I am so excited. First of all you have been a saint. I'll never forget your kindness or your name for that matter. This information you have sent is excellent and helps me tremendously. I'm not very good with computers, but you have nailed it on the head and put this into perspective for me. Thank you, thank you, thank you. I told my sister about all the articles I read from the three links that you sent. Very interesting stuff. I cannot believe all of this research that is out there.

I'm am definately going for a second opinion. My neurologist at mayo retired. I liked her. Her specialty was ms but she gave me good advice and really cared. I do feel like I have to start over but at least I have a lot of testing already under my belt that a can share with a new neurologist . My sense of direction is getting worse and I feel like I have to do something now rather than later.