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DiscussionWhat type of encephalitis? Autoimmune, limbic, or encephalopathy?
Autoimmune Diseases | Last Active: Aug 11, 2018 | Replies (61)Comment receiving replies
Replies to "Hello @techi, that's an interesting question you posed. I did run across the story - "Mayo..."
Very interesting article. Thank you.
John l am sorry its at 9pm est. Augusr 27th
I can't find the program so that I may record it on my dvr. What is the name or title of it?? I know you said Sunday august 27 at 9 pm eastern. Thanks for your help.
Its on cnn at 9pm est. I forgot the name but its on autoimmune encephalitis. You can look on the website autoimmune encephalitis alliance and it 3 women telling their stories. Hope you find it and set your dvr.
Thanks I'll try to find it
You are well. Have a goodnight.
The encephalitis program is on HLN. Channel. It's called "something is killing me". August 27 , 9 pm eastern. I found it on autoimmune encephalitis alliance. Thanks again!
John thank you for that website. I read that story and its so interesting. I have a neurologist at the mayo clinic and i feel shes knowledgeable but i know that autoimmune encephalitis is not her area. I know it only Dr Britton because i was reading is bio. I have had so many neurologist and all of them i have disgreed with that why i had to have a second opinion and all the symptoms that are described as symptoms i have had and still dealing with. And i know these doctors here know they misdiagnosed me because they are on pins and needles and the hospital i was going to my insurance is dropping them . Well that doesn't sound good and 600 doctors are going to lose my insurance carrier which is there main revenue. So i know deep down inside thats what i have but the neurologist at the mayo clinic said i had it previously but it not currently showing and Dr Britton said sometimes all you test may come up normal but you still have it. Im truly blessed to be alive and i just wish he could read the reports without offending anyone. Ive been goiing through this a long time and when you finally see someone who knows what to look for gives you so much relief that it wasn't in your mind. And the neurologist im seeing said you might have to except it. So l am suppose to have my PET done and l have already seen 2 psychiatrist and when l come back they want me to see another. And they want to test me for dementia because it runs in the family, which Dr Britton said sometimes they will think you have that also. And l just can't keep coming to Minnesota. So l really don't know what to do. In just 3 months l have had more positive results since 20yrs and in 3 days more understanding in autoimmune encephalitis that its a disease not a mental condition something l always felt inside. Thanks John