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← Return to GBM after two years of treatment survival of 69 year old man?
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GBM after two years of treatment survival of 69 year old man?
Brain Tumor | Last Active: Jul 26 4:09pm | Replies (14)Comment receiving replies
@colleenyoung
My husband had resection July 2024. Followed up with radiation and chemo (TMZ). Using the Optune device from Novacare. Fast forward to Feb 2026. Tumor coming back in previous location, and also mid-line. Tumor board declined to do further surgery. Infusion chemo every 3 weeks, along with an oral chemo every 6 weeks. He can’t drive-lost peripheral vision on left side 12/2025, also has numbness in left hand and foot. Needs help to dress himself, which makes him angry. Definite personality change. Neuro-onocolgist says I need to start thinking about hospice. Unsure how much more chemo ahead, will depend on how next MRI looks. Only God knows how much time he has left.
Replies to "@colleenyoung My husband had resection July 2024. Followed up with radiation and chemo (TMZ). Using the..."
@kujhawk79 I’m sorry he has changed so much-I’m beginning to deal with some of this. It’s nerve wracking to never know who he will he be moment to moment. People will say be strong-it means you are always on guard. You lose yourself in the tragedy of what once was with every gesture, every emotion.
@kujhawk79, being told to start thinking about hospice must be hard to hear. Your husband's personality changes are hard to handle on your own. I suggest starting by asking for a referral to palliative care. A palliative care team can help manage your husband's symptoms and side effects while he is on chemo and treatment. In addition, many cancer centers also have social workers and/or chaplains, occupational therapists, pain management specialists and other skill sets as members of the palliative care team. A palliative social work could be a useful support for YOU as you help manage your husband's care and care for yourself. They can also help find resources that you may need now and in the future, like hospice care.
Do you already have a palliative care physician as part of your husband's care team? How are YOU doing today?
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@kujhawk79 I'm so sorry- your post broke me. My 35 year old son is on his own journey with glioblastoma since the end of May and is currently doing radiation amd chemo. I hate this!!