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Pemphigus Vulgaris: What treatment helps you?
Autoimmune Diseases | Last Active: 13 hours ago | Replies (8)Comment receiving replies
Welcome, @raypauls1. I'm tagging other members like @darden708 @cicimee2 @darden708 @glongdmd @barbarajesse to join this discussion about pemphigus vulgaris and treatment. They can share their experiences and what has helped them.
Many people with pemphigus get better, especially if treatment is started early. But it may take years and can require taking medicine for a long time.
Raypauls, is this a new diagnosis for you? What treatment has been recommended?
Replies to "Welcome, @raypauls1. I'm tagging other members like @darden708 @cicimee2 @darden708 @glongdmd @barbarajesse to join this discussion..."
@colleenyoung
I have just had my 1st Retuximab infusion after being on Myfortic for 4 months with minimum benefit. Had a reaction which was managed well by staff and I was able to complete the course. No real side effects to mention, not even a lot of fatigue so far. I know I am in for the long haul but I will continue fighting this condition looking for relief and even remission. Best to all. C
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I have bullous pemphigoid and muscus membrane pemphigoid. My skin is doing good at the present time. For my mouth, I had a tray made for my upper and lower gums. I use Clobetasol Propuonate gel. My mouth is a lot better. My gums are also improving. Good Doctors really help.