← Return to Anyone have Cutaneous T Cell Lymphoma?

Discussion

Anyone have Cutaneous T Cell Lymphoma?

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (174)

Comment receiving replies
@cindylb

Thank you dazlin.............your email helps. It's just hard to not know what it is. I have no diagnosis yet, just regular check ups and watching and waiting. I've only had one biopsy (spongeotic dermatitis) which is very general. I appreciate the input from everyone here. There are at minimum 30,000 rashes I was told by my 3rd dermatologist. It's hard to know. I don't have other symptoms so I'm hoping not cancer/lymphoma but I have to keep it in the back of my mind.

Jump to this post


Replies to "Thank you dazlin.............your email helps. It's just hard to not know what it is. I have..."

I agree Cindy, it's tough not getting answers. I've had soooo many tests, so many things popped up...even nodules in my lungs. Dr was ready to do surgery, then just before we scheduled it, one nodule decreased in size, and none had a cancerous appearance. Great as that is..we don't know what they are. Had too many scares that took a toll on me and my poor family. I can't live that way, so I decided to stay focused on how good I feel, despite all the crappiness. I take it one day at a time, and stay thankful for everything I do, and try my very best to live a life of quality. Hang in there, and count your blessings!!