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Anyone have Cutaneous T Cell Lymphoma?

Blood Cancers & Disorders | Last Active: Jul 9 8:01pm | Replies (175)

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@vonbaron36

I have follicular lymphoma . I had radiation for a tumor on my neck.and groin over two years ago. Since then on my own I have been taking curcumin. Cancer has been undetectable for over two years now. I might have a natural remission or curcumin might be helping. I have a pet scan scheduled again in a year.Time will tell.

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Replies to "I have follicular lymphoma . I had radiation for a tumor on my neck.and groin over..."

I too have been diagnosed with follicular lymphoma. I just had my first pet scan since coming to mayo in April for a 2nd opinion. The pet scan showed better results than the Ct scans I had done at my previous clinic. I just had a bone marrow biopsy and if that comes back clean then I can have a low impact radiation treatment on the affected nodes in my neck. I think the curcumin is probably helping. I take that as well.

What is curcumin? Prescription or natural thing?
Pam

I had the same thing on my neck. It was large. Had radiation and started taking curcumin on my own. Had two pet scans since. No detectable follicular lymphoma since. Over two years. another pet scan in a year.

curcumin is a compound in the spice turmeric. it only comprises about 5 percent of turmeric. it has most of the medicinal properties of turmeric. That is why curcumin in tablets is used.