Incontinence

Posted by wheel1 @wheel1, 2 days ago

I know many new members come on this board to research surgery, active surveillance and Radiation treatments after their diagnosis. This post is for those that can consider surgery in their research and decision making. In some cases their disease, age, comorbidities, or other factors have already ruled surgery out. I am also only addressing only one side effect and that is a significant side effect as it is written about often regarding the frustrations and struggles regaining continence. I read often the one year mark to regain it, the constant daily kegels, and the necessity of the obvious pads. ALL of this is significantly accurate in regards to the standard Robotic Assisted Laparoscopic Prostatectomy which most surgeons will be performing. I read recently a comment the “luckier ones” get their continence back sooner than a year and that maybe is true with most of the surgeries. I don’t consider myself a luckier one, I consider myself the standard patient of a surgeon performing the Retzius sparing technique. I think when one is just coming on the board and reading these comments it is certainly a factor in their concern naturally over surgery, that is why I feel it is important to share the documented studies regarding the Retzius Sparing technique regarding RALP’s. Most surgeons are not trained in this and their is certainly a learning curve for surgeons in this technique that does not cut the Puboprostatic ligament holding the bladder in place, the standard common, most often RALP cuts the ligament. If you go in for a surgery consultation and have not researched the procedure the surgeon will perform it’s probably a 90%+ a standard RALP and he knows no different and probably is very proficient and good at it. Just remember all the continence recovery time it could take under this technique versus the newer Retzius technique which is not some experimental new technique. It is advancement in prostate surgery. Like regular RALP you do need a experienced skilled surgeon in Retzius RALP. Retzius RALP in many cases has immediate continence or 70% to 90% in weeks, not months. Overall studies will show by a year regular RALP has caught up, but why wait months or a year struggling with pads, pullups and kegels if not necessary. Are all patients good candidates for this this surgery, i.e. large prostate versus small prostate, obese versus non obese, age. I don’t know but the surgeon should. I personally know of three patients from my surgeon with in essence immediate continence (within days) . Most Centers of Excellence have one surgeon likely performing this technique but they typically have multiple surgeons performing regular RALP’s and most patients just go to the surgeon they are referred to even at the COE and who will perform the standard RALP no questions asked. Studies listed below have shown within weeks of Retzius-sparing robotic prostate removal, 70% to 91% of patients achieve almost total urinary continence. This technique yields significantly faster recovery of bladder control compared to conventional methods. Early continence rates and recovery milestones for the Retzius-sparing approach include: At 1 Week (Post-Catheter): Studies show 71% to 91.2% of patients are continent (using zero pads or just one security liner).At 4 to 6 Weeks: Continence rates climb to between 81% and 90%.At 12 Weeks: Studies observe up to 96% to 100% of patients regaining almost total control. Research published in BJU International indicates that by avoiding dissection in the Retzius space, the surgery preserves crucial anterior support structures and nerves, leading to this early return of bladder control.

The studies that support this Retzius-sparing vs. standard robot-assisted radical prostatectomy for clinically localised prostate cancer:

a comparative study
Vincenzo Ficarra et al. Prostate Cancer Prostatic Dis. 2023 Sep. from NIHHome / Vol 9, No 6 (December 27, 2020) / Surgical techniques to improve continence recovery after robot-assisted radical prostatectomy

Review Article on Surgery for Urologic Cancers
Surgical techniques to improve continence recovery after robot-assisted radical prostatectomy
Ahmet Urkmez, Weranja Ranasinghe, John W. Davis
Department of Urology, Division of Surgery, The University of Texas MD Anderson Cancer Center, Houston, TX, USA

Journal of UrologyAdult Urology1 Jan 2020
Retzius Sparing Robot-Assisted Radical Prostatectomy Conveys Early Regain of Continence over Conventional Robot-Assisted Radical Prostatectomy: A Propensity Score Matched Analysis of 1,863 Patients

I just wanted to share this information for the new members coming on board or members currently on AS that things are changing and not to be discouraged by concerns over what many have seen in the past as the inevitable struggles they must face and accept after surgery. Will there be others that don’t have the rosy experience that this seems to paint, probably so, but it is a technique that every new patient should consider, evaluate and review in their research in deciding surgery.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Thanks for sharing. My surgery is scheduled for middle of September.

I am grateful and optimistic my surgeon will perform retzius sparing surgery. He has been doing this surgery for the past two years.

Your post has been an answer to my prayers to help confirm my decision of surgery vs radiation.

Thank you and best wishes

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@wheel1 - lots of good info there, thanks for posting that.

One thing you mentioned:

“Are all patients good candidates for this this surgery, i.e. large prostate versus small prostate, obese versus non obese, age. I don’t know but the surgeon should.”

I’m not all that familiar with it, but I do know there is a least one thing that’ll lessen a patient’s candidacy for this type of surgery…suspected spreading of cancer. There was suspicion that my tumor had escaped the gland (later pathology showed that it had just begun to, but thankfully, my nodes, nerves, vesicles, and surrounding tissue all came back negative), and that kept me out of the pool for that particular surgery - multiport RP for me!

There are probably other things as well, but I’m aware of that one from my own case.

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I would encourage the reading of this article, MD Anderson, obviously one of known top notch cancer centers. They do discuss the loss of penile length known as Preserving maximal urethral length.
Preoperative membranous urethral length (MUL) is associated with postoperative continence rates and time to continence recovery (10,56). The continence rates achieved by preservation of maximal MUL was superior to the combination of posterior urethral reconstruction and anterior bladder suspension

Department of Urology, Division of Surgery, The University of Texas MD Anderson Cancer Center, Houston, TX, USA

Surgical techniques to improve continence recovery after robot-assisted radical prostatectomy - Urkmez - Translational Andrology and Urology
https://tau.amegroups.org/article/view/41777/html

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Profile picture for wheel1 @wheel1

I would encourage the reading of this article, MD Anderson, obviously one of known top notch cancer centers. They do discuss the loss of penile length known as Preserving maximal urethral length.
Preoperative membranous urethral length (MUL) is associated with postoperative continence rates and time to continence recovery (10,56). The continence rates achieved by preservation of maximal MUL was superior to the combination of posterior urethral reconstruction and anterior bladder suspension

Department of Urology, Division of Surgery, The University of Texas MD Anderson Cancer Center, Houston, TX, USA

Surgical techniques to improve continence recovery after robot-assisted radical prostatectomy - Urkmez - Translational Andrology and Urology
https://tau.amegroups.org/article/view/41777/html

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@wheel1

Yes ! That is what we were told also by our surgeon.

Unfortunately it is not always possible since doctor can discover some additional things during the course of surgery. He might discover some additional spread of the cancer and might need to cut accordingly. That is why there are really no guarantees for surgery results in regard to the length or continence or nerve spearing - sometimes surgeon just has to cut more. : ((

Luckily my husband has zero shortening and at this point nothing else that is really out of order "down there" and full continence but he was explained that his prostate was very big and that surgery will require extra time and that surgeon will try his best and not touch bladder neck.

Sometimes though it is not possible - sometimes cancer is found on the neck or even part of the bladder or extending down the nerves, etc etc. Unfortunately no matter how good the doctor is or what technique is used patient can end up with SA.

Of course - one should always choose the best surgeon that there is and hope for the best. 👍

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Profile picture for surftohealth88 @surftohealth88

@wheel1

Yes ! That is what we were told also by our surgeon.

Unfortunately it is not always possible since doctor can discover some additional things during the course of surgery. He might discover some additional spread of the cancer and might need to cut accordingly. That is why there are really no guarantees for surgery results in regard to the length or continence or nerve spearing - sometimes surgeon just has to cut more. : ((

Luckily my husband has zero shortening and at this point nothing else that is really out of order "down there" and full continence but he was explained that his prostate was very big and that surgery will require extra time and that surgeon will try his best and not touch bladder neck.

Sometimes though it is not possible - sometimes cancer is found on the neck or even part of the bladder or extending down the nerves, etc etc. Unfortunately no matter how good the doctor is or what technique is used patient can end up with SA.

Of course - one should always choose the best surgeon that there is and hope for the best. 👍

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@surftohealth88
You are very right until they get in there and see things nothing is guaranteed regardless of the surgeon and I think most accept that. If cancer has spread to the bladder neck or elsewhere and was not foreseen their is not alot more can be done. Although everything including PET seemed to indicate mine was in the capsule and most surgeons remove the prostate and cut their margins, close up and send everything to pathology, fortunately for me my Surgeon is one of the few that holds surgery and sends the tissue immediately to Pathology for frozen analysis and inking for positive margin check and although mine was supposed to be negative it wasn’t and he started more cutting and I received the negative margin which was so important since it turned out I had cribriform. Just imagine how many patients have been told they have positive margin at the post surgical appointment when it might and I say might have been possible for the surgeon to get them negative margin if they had frozen analysis immediately done. Next month I have my 24 month PSA check and pray for my lab a continued <.04 undetectable. It does really boil down in many ways to choosing the best surgeon for handling the unexpected that can be handled when you have the best surgeon. I know that big prostates can be challenging so your husband was fortunate with his choice of surgeon.

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Profile picture for wheel1 @wheel1

@surftohealth88
You are very right until they get in there and see things nothing is guaranteed regardless of the surgeon and I think most accept that. If cancer has spread to the bladder neck or elsewhere and was not foreseen their is not alot more can be done. Although everything including PET seemed to indicate mine was in the capsule and most surgeons remove the prostate and cut their margins, close up and send everything to pathology, fortunately for me my Surgeon is one of the few that holds surgery and sends the tissue immediately to Pathology for frozen analysis and inking for positive margin check and although mine was supposed to be negative it wasn’t and he started more cutting and I received the negative margin which was so important since it turned out I had cribriform. Just imagine how many patients have been told they have positive margin at the post surgical appointment when it might and I say might have been possible for the surgeon to get them negative margin if they had frozen analysis immediately done. Next month I have my 24 month PSA check and pray for my lab a continued <.04 undetectable. It does really boil down in many ways to choosing the best surgeon for handling the unexpected that can be handled when you have the best surgeon. I know that big prostates can be challenging so your husband was fortunate with his choice of surgeon.

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@wheel1
I agree 100 % !
Your surgeon is one in a million with that approach and he deserves special place in heaven - what can I tell you 🏆🥇 ...

I wish I have funds to make PC doctors "Hall of Fame", honestly ! Such a rarity ...

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