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Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: 6 hours ago | Replies (703)
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@asindelar

Remember, aspirin is "Robin" to HU's "Batman." They work best as a team!

Aspirin makes our platelet-heavy blood slippery, less prone to clotting.

HU tells our bone marrow KNOCK IT OFF with the platelet production.

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Replies to "@asindelar Remember, aspirin is "Robin" to HU's "Batman." They work best as a team! Aspirin makes..."
garyr443 | @garyr443 | Jul 12 3:05pm

@janemc That explains the recomendation for 1 baby aspirin per day.

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asindelar | @asindelar | Jul 12 9:10pm

@janemc 😂 Best ET analogy ever! I’ll never think about aspirin and HU the same way again. Thanks for making me smile 😊

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garyr443 | @garyr443 | Jul 15 8:44am

@janemc I wish the Hydroxyurea was more effective at that. Depending upon what I eat, my platelet count can shoot through the roof, Hydroxyurea or not. If I eat what the doctors and nutritionists recommend (a "balanced diet" with Omega 3 fatty acids, leafy greens,etc) it raises my platelet count. As soon as I stopped eat salmon and tuna and cheddar cheese, my platelets dropped back to the normal range. I can't eat grains and dairy because it raises my blood sugar and I don't want to wind up obese and diabetic again. I'm left with nothing to eat but meat, which works fine for me because it's the staple of my paleo diet, but then doctors tell me it's causing my supposed kidney disease that I have never had any symptoms of. So, what CAN I eat, then?!

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