@maeve115

Creon was mentioned before I started Lanreotide. I forgot about creon but I definitely think I could use some. I thought Lanreotide was a slower, extended release medication but it changes something overnight.

I'm used to the biologic infusion that I get every 4 weeks. It is a 2-3 hour process that only makes me tired. I'm never sick and tired. The biologic infusion and the injection of Lanreotide were scheduled together for my convenience to be done in one trip but 2 separate trips might be better.

They say there is no "interaction" but one medication suppresses my immune system and one medication suppresses my hormones. I don't think my body likes both to be suppressed on the same day.
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Do you know anything about the IL-6 inflammation pathway and neuroendocrine tumors (NETs)
Actemra (tocilizumab) inhibits the IL-6 cytokine which might also decrease inflammation caused by NETs. I get Actemra for my autoimmune disorders not NETs. I have read that NETs can cause an excessive amount of IL-6 driven inflammation too.

Some people stop Actemra when their autoimmune disorders go into remission but I can't seem to stop Actemra.
https://pmc.ncbi.nlm.nih.gov/articles/PMC7664780/
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Actemra suppresses my immune system but also stops inflammation so I don't know if that is bad or good overall. My rheumatologist knows about my neuroendocrine cancer but hasn't said anything yet. My rheumatologist is the next specialist I will see. Then I see my endocrinologist but he says he doesn't specialize in NETs. There is another endocrinologist who specializes in NETs.

Every specialist has a different area they focus on. I think too many specialists isn't always that good but doctors like to specialize.