Help with no gas, empty bowel diet during RT.

Posted by carlsbadguy @carlsbadguy, 3 days ago

I'm scheduled to have fiducial markers and SpaceOAR placed Aug 4/5 and 5.5 weeks of radiation treatment starting on Aug 17. I have a sample diet and eat/don't eat list of foods from my RT's Nutritionalist and have done plenty of research. However I had a partial colectomy 8 years ago due to severe bouts of diverticulitis and lost about 12 inches of my colon. As a result, I am a pretty gassy person, and my bowel almost always feels full or close to full, with 2 and sometimes 3 BMs a day. What foods/meals have worked best for those of you who have undergone RT? I'm tempted to just not eat during the morning/day before treatment, but I will only get each week's schedule the Friday before.

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Profile picture for heavyphil @heavyphil

@climateguy Ah memories…they handed me a Fleet enema once and told me to go to the bathroom…but DON’t pee!!
The enema initially had no effect so here I am doing jumping jacks, squat thrusts and punching myself in the gut to get things moving…thank goodness for large handicap access lavs!
I too used the prick pinch when the time arrived but no blood🥹…
If there was A hidden camera in that bathroom somebody could have made a killing on YouTube….
Phil

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@heavyphil Yeah, they told me during initial set that I needed to clear my rectum. No enema and to not pee. Then she commented like only 10% move bowels without peeing. I reported back that I wasn't in the 10% category lol. Carry a small enema in my coat pocket every rad session.

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Profile picture for carlsbadguy @carlsbadguy

@surftohealth88 thank you, but the Orgovyx doesn't seem to be causing any intestinal issues, 3 weeks in and only some hot flashes and fatigue. I don't think the fact that I'm having proton has anything to do with it, the photon radiologist I saw had the same terms, full bladder, empty bowel and no gas. As I said in my original post, due to severe diverticulitis, I had a partial colectomy in 2018, which removed about a foot of my colon. That's when most of my intestinal issues began. We eat a very clean, natural food diet, but that includes many fruits and vegetables that cause gas for me and some other complex carbs that do the same. The FODMAP diet should help eliminate those issues, we shall see.

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@carlsbadguy
I am so sorry I missed that part 🙏, I apologize. : ( Oh boy, it must be tough in general, loosing such important part of guts could be very challenging in general : (((.
Sending you best wishes for super successful RT therapy and zero side effects. 🍀

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Profile picture for climateguy @climateguy

@heavyphil

My days are just an endless stream of emptiness to me
Filled only by the fleeting moments of radiation treatment memory

[Chorus]
Sweet memories
Sweet memories
Ooh

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@climateguy You just might have a HIT there!🤣🎶

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Profile picture for chippydoo @chippydoo

@heavyphil Yeah, they told me during initial set that I needed to clear my rectum. No enema and to not pee. Then she commented like only 10% move bowels without peeing. I reported back that I wasn't in the 10% category lol. Carry a small enema in my coat pocket every rad session.

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@chippydoo Started doing that as well, after my Phys Ed session in the Sloan Restroom.
It was a comfort - kind of like carrying a concealed weapon!
Phil

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For the gas issue, I took over-the-counter anti-gas tablets
preemptively as insurance.

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Profile picture for lsk1000 @lsk1000

For the gas issue, I took over-the-counter anti-gas tablets
preemptively as insurance.

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@lsk1000 yes, thank you. Gas-X works well, but you really have to time things properly. I used them for a while and didn't think they worked, as I would take 1 or 2 and would almost immediately start passing gas. The active ingredient Simethicone, actually allows all the little gas bubbles in your digestive system to create a large bubble which makes it easier to pass the gas you have accumulated. You need to give them some time to work. So, not to be taken right before getting on an airplane or attending a social function, which is how I initially started using them. :-(( I will take one after my dinner and before bedtime during treatment.

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Profile picture for brianjarvis @brianjarvis

I also got each week’s schedule the Friday before; that allowed me to plan not only my meals, but also my full bladder/empty bowel routine as well as my regular schedule around the appointments. (My appointments were always scheduled at 2:00PM or 2:40PM.)

Diet-wise —> I decreased red meats; increased fish, salads; added more fruits, vegetables, and grains/nuts; cut out soft drinks; cut back on processed foods, and made other tweaks here and there. I also added a protein/fruit smoothie every morning, and a protein bar & two energy bars every day. (I think that was helpful in sustaining energy and endurance during the months of low-testosterone due to ADT.)

I also exercised (lifted weights and ran 5Ks or swam) daily.

In the weeks leading up to my radiation treatments, I practiced the full bladder/empty bowel routine every day. By the time of my first treatment, I had the routine down to a ritual.

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@brianjarvis
How did you practice the empty bowel routine?

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Profile picture for mjm8491 @mjm8491

@brianjarvis
How did you practice the empty bowel routine?

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@mjm8491 Together with my full bladder routine….:
> For me, that was just 18oz of water to drink just 30 minutes prior to each fraction. This resulted in not only much of the bladder being distended away from the field of radiation, but also stabilization of the intestines (and anything else in that area). For me, I emptied my bladder 45 minutes prior to treatment time, started the 40 minute drive to the radiation center, 10 minutes into the drive drank 18oz of water, arrived at the treatment center 30 minutes later, and had the treatments. Worked every time; never had a problem.

….at the same time I also practiced my empty bowel routine:
> The bowels being “empty” didn’t mean it had to be clean like it is for a transrectal biopsy; no need for an enema. What my radiation oncologist told me was what they really mean is nothing in the lower intestine, material or gas, that might move during the radiation treatment and cause the prostate to move. So, no gassy foods that might cause issues. At the same time as emptying the bladder 45 minutes prior to treatment (mentioned in above), I would also empty bowels. Worked every time; never had a problem.

Practiced this daily in the weeks leading up to treatments.

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Profile picture for brianjarvis @brianjarvis

@mjm8491 Together with my full bladder routine….:
> For me, that was just 18oz of water to drink just 30 minutes prior to each fraction. This resulted in not only much of the bladder being distended away from the field of radiation, but also stabilization of the intestines (and anything else in that area). For me, I emptied my bladder 45 minutes prior to treatment time, started the 40 minute drive to the radiation center, 10 minutes into the drive drank 18oz of water, arrived at the treatment center 30 minutes later, and had the treatments. Worked every time; never had a problem.

….at the same time I also practiced my empty bowel routine:
> The bowels being “empty” didn’t mean it had to be clean like it is for a transrectal biopsy; no need for an enema. What my radiation oncologist told me was what they really mean is nothing in the lower intestine, material or gas, that might move during the radiation treatment and cause the prostate to move. So, no gassy foods that might cause issues. At the same time as emptying the bladder 45 minutes prior to treatment (mentioned in above), I would also empty bowels. Worked every time; never had a problem.

Practiced this daily in the weeks leading up to treatments.

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@brianjarvis thank you Brian, I was curious how long it took from drinking water until it hit the bladder, your 30 minute scenario seems to be very doable. I don't yet have my actual instructions from my radiologist as far as how much he wants me to drink and how far in advance, but I will certainly start working on this routine.

As far as the bowels being empty, I'm in the process of moving to a FODMAP diet and using some non fermentable fiber to help replace the fiber I'll be losing that should help with emptying my bowels, and throwing in some simethicone to help with the gas.

I have received some amazing tips and recommendations from this group, I'm still a bit nervous to start radiation, but not anything like the nerve ending I was before I asked for help. And for that, I am grateful.

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Profile picture for carlsbadguy @carlsbadguy

@brianjarvis thank you Brian, I was curious how long it took from drinking water until it hit the bladder, your 30 minute scenario seems to be very doable. I don't yet have my actual instructions from my radiologist as far as how much he wants me to drink and how far in advance, but I will certainly start working on this routine.

As far as the bowels being empty, I'm in the process of moving to a FODMAP diet and using some non fermentable fiber to help replace the fiber I'll be losing that should help with emptying my bowels, and throwing in some simethicone to help with the gas.

I have received some amazing tips and recommendations from this group, I'm still a bit nervous to start radiation, but not anything like the nerve ending I was before I asked for help. And for that, I am grateful.

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@carlsbadguy As for being nervous, by the time I made the decision to have proton radiation, I had spent so much time researching it, there was no nervousness or ambivalence whatsoever.

In fact, I was looking forward to it. It was like a walk-in-a-park.

Every session, I went in with questions for the radiation specialists - How does this work? How does that work? What does that mean? Why do you do it that way? Every day - for 28 sessions - we had great technical conversations.

At the time, I could tell you how many ceiling tiles there were in the radiation treatment room, what each sound of the machine meant, how many seconds the radiation was on each pass that it swept over me.

While I was on the radiation treatment table, I would even envision the proton beams destroying the DNA strands in the prostate cancer cells (see attached graphic), similar to how an athlete mentally envisions himself successfully performing a competitive event.

I truly embraced the experience.

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