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@jamie14
At what point did you take lenolinamide? I have 5q del and a HGB at 10-11 and very minimal hindering symptoms. The doc is recommending the med now. I’m not sure I want to start it yet. It’s been so helpful to know others who have this diagnosis. Thanks.

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Replies to "@jamie14 At what point did you take lenolinamide? I have 5q del and a HGB at..."

@ruthshow1 Waited until HGB was under 9. Started and continue to take same dose of 10 . HGB increased to 12 after few months but for last 3 years has stayed at 10-11.