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Is anyone else taking Lynparza (olaparib)? How are you doing?
Gynecologic Cancers | Last Active: 1 day ago | Replies (50)Comment receiving replies
Did you keep your hands and feet pretty much frozen when you got your taxol infusions?
My daughters kept refilling ziplock bags with ice from the nurses station and I stayed very cold the entire three hours. The gloves and footies from amazon didn’t stay cold long enough so that’s why we switched to ziplock bags. I don’t have any neuropathy and am so sorry you are having trouble with it.
I’ve been on Avastin infusions once every three weeks and lynparza 250 mg twice a day since May and my biggest side effect now is how it messes with my taste buds and appetite. There is some fatigue but not like when I was on the full dose, 300mg 2x/day for two months. I had to start and stop often on the higher dose.
My maintenance plan started march 5th and my scan in June showed a small spot of new growth. My ca125 and signatera results have been increasing so I’ll be starting a new plan soon. Not sure what it’ll be. Stay tuned for that, lol!
I wish you all the best from the bottom of my heart.❤️
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@amls
update: I had another scan two weeks ago and it turns out that the new growth is actually a swollen vein with a small blood clot in it, most likely from the surgery and avastin.
They found a couple of more small clots so I started taking a blood thinner to fix the problem that they said is common. We are so surprised and happy it isn’t new cancer growth like we thought it was! (Edited here to correct autocorrect spelling error. Changed the word bought to thought)
My ca125 is still rising but there is no visible change on the scan since I stopped chemo in Feb so the dr thinks it cld be growth on the molecular level that isn’t visible yet.
We decided that I will stay on my current maintenance plan - avastin infusion once every three weeks and Lynparza 250 2x/day - and watch for visible growth on scans every 8 weeks.
When we see growth, I’ll be getting carbo and doxil infusions.
I’m hoping the Lynparza and avastin slows the growth down. 🤞