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Nearing end of Evenity treatment

Posted by szark55 @szark55, Jul 2 7:45am

End of this month is my last Evenity set of injections. I had bone density last month, Dr messages me and said minor improvements in most areas, but some a little worse. Will discuss at next appt. I know it is recommended for ‘maintenance’ after this, but I’m concerned at what the dr may tell me. I know the past DEXA have shown pretty bad in my hips ( femoral neck- both sides) I think that’s where the problem still is. I already, and have for years, taken supps, and I am fairly active. Will be back in gym soon.
Any suggestions to help improve?

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Michael Lavacot | @michaellavacot | 17 hours ago
In reply to @dianat "@michaellavacot I am in the process of getting a new rheumatologist. I just finished injection 9..." + (show)
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@michaellavacot
I am in the process of getting a new rheumatologist. I just finished injection 9 of Evenity and new doc recommended going to Prolia. I was concerned about the exit plan from Prolia. She said after 1-2 years they would switch to a Reclast or Fosomax (probably Reclast since I tend to have gastro issues and it's easier). She said as long as there is an exit plan it is safe to come off.

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@dianat - I have heard doctors using Prolia for just a year of two after Evenity so that's good, but I personally have issues believing that is the best use of Prolia. Again, not a doctor here, but I am not convinced short term Prolia makes sense. I will ask around at the Santa Fe Bone Symposium a the end of the month and listen to arguments from the top docs. Ping me again after and I will let you know what I find out. 🙂

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jmc50 | @jmc50 | 17 hours ago
In reply to @michaellavacot "@jmc50 - Oh no! Not a typical response to Evenity. Could it be caused by something..." + (show)
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@jmc50 - Oh no! Not a typical response to Evenity. Could it be caused by something else? Maybe a coincidence on the timing of the injection?

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@michaellavacot I’ve read so many reviews and many many women have the same side affects.

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Michael Lavacot | @michaellavacot | 14 hours ago
In reply to @jmc50 "@michaellavacot I’ve read so many reviews and many many women have the same side affects." + (show)
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@michaellavacot I’ve read so many reviews and many many women have the same side affects.

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@jmc50 good to know. Thanks

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nliebrecht | @nliebrecht | 4 hours ago

I consulted four surgeons before having back surgery, and the one thing on which they all agreed was that I should get Evenity shots prior to having surgery. I did this for 6 months at which point I felt that I could no longer tolerate the side effects of this drug. The most benefit from Evenity occurs in the first six months, and both my surgeon and the provider treating my osteoporosis agreed that 6 months would be sufficient. It has now been 7 months since my back surgery, and I seem to be doing just fine. Many people seem to have no problem having Evenity shots for 12 months, but others (me included) are not so fortunate. If you can manage the side effects for another three months, that would be good, but if not, discuss this situation with your doctors and see if 9 months would be sufficient. If it is necessary to see more than 2 doctors, do it. In my case, I developed hypertension from this drug and even ended up in the ER at one point with a hypertensive crisis. As much as I would have liked to continue the full 12 month course of treatment with Evenity, it was not worth having a stroke. My blood pressure started to return to the normal range shortly after getting off the drug.

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szark55 | @szark55 | 3 hours ago
In reply to @nliebrecht "I consulted four surgeons before having back surgery, and the one thing on which they all..." + (show)
Profile picture for nliebrecht @nliebrecht

I consulted four surgeons before having back surgery, and the one thing on which they all agreed was that I should get Evenity shots prior to having surgery. I did this for 6 months at which point I felt that I could no longer tolerate the side effects of this drug. The most benefit from Evenity occurs in the first six months, and both my surgeon and the provider treating my osteoporosis agreed that 6 months would be sufficient. It has now been 7 months since my back surgery, and I seem to be doing just fine. Many people seem to have no problem having Evenity shots for 12 months, but others (me included) are not so fortunate. If you can manage the side effects for another three months, that would be good, but if not, discuss this situation with your doctors and see if 9 months would be sufficient. If it is necessary to see more than 2 doctors, do it. In my case, I developed hypertension from this drug and even ended up in the ER at one point with a hypertensive crisis. As much as I would have liked to continue the full 12 month course of treatment with Evenity, it was not worth having a stroke. My blood pressure started to return to the normal range shortly after getting off the drug.

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@nliebrecht I’m thankful you are ok and that your back surgery seems to have been successful. Are you on something else now, like Reclast?

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