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Sue, Volunteer Mentor avatar

Let's Talk About Using Acronyms

MAC & Bronchiectasis | Last Active: 51 minutes ago | Replies (33)
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Profile picture for cholash @cholash

@blm1007blm1007 like you , I’ve been confused with it all. I learned I had Bronchiectasis not too long before starting Brinsupri . On anything where there is involvement from Insmed, makers of Brinsupri , bronchiectasis IS called BE. Look at their website. I think “BE” is even mentioned in some of their commercials.
In fact , World Bronchiectasis Day , “BE the light”, appears tied to this acronym .

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Sue, Volunteer Mentor | @sueinmn | 4 hours ago

@cholash & @blm1007blm1007 Yes, Insmed and others are now using BE. But, if you look up "BE" in openmd.com you will not find that as a common acronym.

The point isn't whether anyone uses it, it is that it can mean many things, and confuse people.

So let's circle back to the point of my post - please spell out terms, in every message, before using an abbreviation. Thousands of people read our messages who have not necessarily read through the entire discussion, which can be many pages long.

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