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MGUS and hand tremor

Blood Cancers & Disorders | Last Active: Jul 13 3:18pm | Replies (10)

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Profile picture for tracypage @tracypage

I have hand tremors. I have probably had them longer than I knew about the MGUS (2016) or maybe about the same time. However they just changed to a more intense tremor that is now affecting my job. They are evaluating for anti-mag and cryoglobulinemia but I have other symptoms as well like intense neuropathy and intense cold as well as ringing in my ears, balance issues and headaches. My IgM has been hanging out around 1100 right now and has been as low as 800 and as high as 1340 this year. It seems to be a moving target. My symptoms have significantly changed in the last few months. I am positive for myd88 l265p.

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Replies to "I have hand tremors. I have probably had them longer than I knew about the MGUS..."

@tracypage

So sorry,
My IgM levels have been fluctuating.
I also experience persistent ringing in my ears (tinnitus),
particularly noticeable vision problems in my left eye,
progressively worsening balance issues,
difficulty navigating uneven surfaces, frequent headaches and
skeletal muscle weakness.

I might have either:
Waldenström Macroglobulinemia (WM) https://www.nejm.org/doi/full/10.1056/NEJMoa1200710
Or:
Other Lymphomas (ABC-DLBCL) It is also commonly found in activated B-cell diffuse large B-cell lymphoma (ABC-DLBCL) and a portion of marginal zone lymphomas. https://pubmed.ncbi.nlm.nih.gov/25723115/