The latest (of 5) neurologists took a long shot and tested me for amyloidosis as the source of my peripheral neuropathy.  Tested for it twice, 3 months apart, and came back positive for kappa light chains free serum which is usually an indicator of multiple myeloma or amyloidosis as the cause of peripheral neuropathy.  It is unusual for doctors to think of testing for this that it usually goes undiagnosed until too far progressed for treatment to be effective.  I am on my way  now to the hematologist at Mayo Clinic for the tests that will need to be done next (fat pad biopsy and possible bone marrow).  If those tests also come back positive for amyloid deposits, it will then be discussed if I can be selected for the stem cell and chemo treatment to stop the progression of the disease.

Thank you for sharing the additional info. Sounds like you really have a great team of neurologists and they have a plan in place. So much we don't know about the different causes of neuropathy. This is really helpful information.

Thanks again....John