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Dermatomyositis: Does anyone else struggle with summer and sun?
Autoimmune Diseases | Last Active: 21 hours ago | Replies (3)Comment receiving replies
It is important to stay out of the sun if you find it triggers rashes for you - many use the rashguard shirts with a built in UPF of 50, wide brim hats, high SPF creams etc.
How are you finding the combo of IVIg and Rinvoq? Does it seem to be working for you?
I have DM, but I’ve been dealing with RA and spondyloarthritis for about 7 years and started testing positive on the myomarker as soon as I stopped the new biologic I had a bad reaction to. It’s likely DM was underlying all along but just never picked up.
I’m on Rituxan and starting SCIg next week (I got a clot in the brain after IVIg so no more IVIg for me!). Hoping that if it works, I can recertify to drive so I can be more independent and finally get out of the house 🙂
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@pm56
I’m not on the medication you are taking and I have to be just plain careful.
I’ve had the sensitivity to the sun most of my life since early childhood.
Have you done skin testing for chemical chemicals? I know for me I am highly sensitive to chemicals and there are so many things out there that are supposed to be safe, but are not safe.
Medication’s are really bad as I also have an egg white and a milk allergy. Both of these are in a lot of medication’s also, they have an inactive group on medication. For me if it’s active or inactive, I will react.
I have found also certain times of the year I react worse. They tell me the sunshine changes throughout the year as to what is actually in it.
Also, there is aluminum and medication’s the coloring. I can’t have aluminum coloring.
I hope this can make you start thinking what else might be triggering your reactions and I do wish you the very best