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dianne2026 avatar

Finding out what I have.

Autoimmune Diseases | Last Active: Jul 15 6:04am | Replies (11)

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Profile picture for loriesco @loriesco

You must learn to advocate for yourself. No one else will do that. I was misdiagnosed for 25 years on one disease, 30 years on another and an average of 15 to 20 years with joint replacements. I think the key is to keep searching out for a good doctor(s) that are supportive. I’ve had many doctors who are not. I had one Doctor Who wrote for an entire back surgery then got angry with me and wouldn’t do the surgery. I was beside myself upset for three years until I met a new surgeon who rolled his eyes and I said why? And he told me that he did the other surgeons revision surgeries. Later, I found out that that other surgeon also had a lawsuit for negligence. He was top drawer and on television commercials. I had a whole arthritis department at UCSD dismiss me with a variety of “you don’t have this and you don’t have that” well then, What DO I have? It was not 25 years of seeing doctors that led me to the diagnosis of gout. It was a member in this group that told me about a supplement which made me ask my doctor why the supplement worked which led to a uric acid test which led to 25 years of arthritis, pain vanishing overnight with a supplement. My 25 years of pain and stiffness was not from the osteoarthritis which shows up in all the x-rays but from GOUT. They didn’t solve my pain. A total stranger led me to the diagnosis.Never stop advocating for yourself never stop seeking answers until YOU are satisfied. Good luck.

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Replies to "You must learn to advocate for yourself. No one else will do that. I was misdiagnosed..."

@loriesco i’m sorry you struggled so much! I am trusting you are feeling much better now. I wonder if you could name the supplement that helped you with gout. My levels are high, but the med the doctor prescribed gave me diarrhea. It also affected my kidneys. Thank you so much and all the very best to you.