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Diagnosed with sarcoma? Let's share

Posted by Colleen Young, Connect Director @colleenyoung, Jun 21, 2017

Because sarcomas are rare, I would like to start a conversation to help connect people living with sarcoma or caring for someone with sarcoma.

As you know, sarcoma is the general term for a broad group of cancers that begin in the bones and in the connective or soft tissues (soft tissue sarcoma). There are many different types and sub-types of sarcomas, for example: angiosarcoma, chondrosarcoma, Ewing’s sarcoma, fibrosarcoma, gastrointestinal stromal tumor (GIST), Kaposi's sarcoma, leiomyosarcoma, liposarcoma, malignant peripheral nerve sheath tumor, osteosarcoma, pleomorphic sarcoma, rhabdomyosarcoma, synovial sarcoma and more.

Let's get to know one another. Why not start by introducing yourself? What type of sarcoma have you been diagnosed with?

Interested in more discussions like this? Go to the Sarcoma Support Group.

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Colleen Young, Connect Director | @colleenyoung | 4 hours ago
In reply to @banana11 "My Myxofibrosarcoma is in my hip area! I had 25 radiation treatments and receive Ketruda every..." + (show)
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My Myxofibrosarcoma is in my hip area! I had 25 radiation treatments and receive Ketruda every 3 weeks! My tumor shrunk, but damage done to top of femur and small part of pelvis! Hip disarticulation is scheduled! I feel fine, no medications, my walking is normal, and I perform all daily activities! The reality of surgery mid July is starting to hit me! Trying to keep a positive recovery plan, and prepping for PT and prosthetic use! I was an athlete all my life and my mind won’t accept failure! I hope it serves me well!

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@banana11, when is surgery? How are you doing with getting things ready for your recovery?

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