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← Return to Wildly fluctuating O2 levels
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Lung Health | Last Active: 4 hours ago | Replies (214)
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I also have oxygen induced hypoxia so my pulmonologist gives me a prescription to fly with. I LOVE my Inogen unit! Other than that, when I share how concerned I am about my fluctuating levels to my pulmonologist, he just tells me, “relax and take a few deep breaths.” It’s all I can do not to roll my eyes at him. I have taken pictures of my low readings and shown him, and he will just blame it on my pulse oximeter, despite the fact that I have several and they all show the same fluctuations, and the fact that my husband’s 02 when taken on the same meters never shows wild deviations like mine does. I also invested $200 in a medical grade oximeter which he was unimpressed with. Best of luck to you!
Replies to "@gigipigi I also have oxygen induced hypoxia so my pulmonologist gives me a prescription to fly..."
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@shunt I got the same response originally from my pulmonologist. I also have reynauds so they poo pooed my o2 devives. I kept pushing my primary and pulmonologist. I finally had a CPET test and more information came out about my heart, but it still didn't explain my nocturnal hypoxia. I requested another sleep study. In the journey (pushing my primary and pulmonologist) we discovered i had had a stroke and have a PFO. My pulmonologist originally suggested it could be brain related before all the testing. So..if you research it may be central sleep apnea which is brain related for nocturnal hypoxia. My daytime oxygen is apparently fine unless I'm on an airplane.