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Requesting Pathology but they don't want to release...
If anyone could help with suggestions, I'd be grateful.
I have done NGS at a major center in NY. I have requested my Digital Whole slide pathology images and a few other things (VCF file, BAM/CRAM files, FASTQ files etc). They say the policy is that the medical records is the clinical result - not raw data.
I am wanting this above for further testing possibly with more advances/sophisticated AI. I'm not alleging an error in testing.
How do I get what I am requesting?
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@mjp0512
Yes, even Dr. Kwan here on Mayo in one of his presentations said that all patients should ask for digitalized files of their radiation field so if they ever come to Mayo they can show them what field was involved and than a new plan can be made accordingly.
If anything - we all should ask for ALL files of anything ever done and have it at home ! Having copies of anything digital in multiple places is always a good idea, especially nowadays. IMHO
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2 Reactions@mjp0512
You are correct. I usually make remarks like Reading Comprehension 101, but THIS time I am making the remark to myself! lol
See above my reply to mjp0512!
@daveys
All good...🤣😁🤣
@daveys
hoops...I missed that: the slides themselves are what he wants. Well...
He can ask to have those slides mailed to another physician for review and a report, but yes, the slides are likely and interpretively the property of the Lab. BUT...that would be an interesting court case because the tissue on those slide is "HIS" tissue. Unless the fine print of any disclosures document specified that the slides are, and will remain, the property of the health care institution that prepared them, he could have a case. If he signed-away those rights in the fine print (I doubt it), then the slides remain the property of the health care institution. "Interesting" situation.