@raybepko
I've read your posts with great interest and admittedly some dread. Our health care system is broken in so many ways, but especially where the needs of people and families struggling with long-term, disabling diseases are concerned. You are a great advocate for your wife, but all that stress takes such a toll on the caregiver. Physicians too are under tremendous stress with the constant pressure to see more and more patients (RVUs) thus cutting short the time necessary to truly care for complicated patients. Staff shortages are very real - but again, its all part of a broken system. My husband and I (with Parkinsons and Autonomic Nervous System Failure) are facing the same problems and appreciate your willingness to share openly and honestly. Don't forget to take care of yourself - its OK!!