1. < Neuroendocrine Tumors (NETs)
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NET Stage 2 in Stomach

Posted by soonermimi @soonermimi, Jun 24 4:39pm

I was just diagnosed yesterday. Looking for information, and in particular from anyone with stomach NET. Mine is “well differentiated NET of stomach Grade 2. “ I will be having a wedge surgery after a 2nd endoscopy and an MRI.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

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donnalb4 | @donnalb4 | 18 hours ago

I had no symptoms. I had a endoscopy and they found it!

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donnalb4 | @donnalb4 | 9 hours ago

This is my second NET in my stomach. One looked like an ulcer and the other was a polyp. They both were removed by endoscopy. Do you go to a Doctor that specializes in NETs?

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soonermimi | @soonermimi | 8 hours ago
In reply to @tomrennie "@donnalb4 Hi and welcome to Mayo Connect. Did you have any symptoms that lead to the..." + (show)
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@donnalb4 Hi and welcome to Mayo Connect. Did you have any symptoms that lead to the search that found the polyp? What procedure found it?

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@tomrennie Hi
I already have GERD, a small
hiatal hernia and IBS. I am now experiencing a feeling like my stomach is in my throat and I get a little short of breath because of it. I also have a pain in the middle of my abdomen and the GERD is much worse.
I had endoscopy and the polyp was found and biopsied then.

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Turkey, Volunteer Mentor | @tomrennie | 2 hours ago
In reply to @donnalb4 "This is my second NET in my stomach. One looked like an ulcer and the other..." + (show)
Profile picture for donnalb4 @donnalb4

This is my second NET in my stomach. One looked like an ulcer and the other was a polyp. They both were removed by endoscopy. Do you go to a Doctor that specializes in NETs?

Jump to this post

@donnalb4 I will assume that you are asking me that question. Just an FYI, if you hit the blue reply button underneath each comment, it shows who you are responding too.

I do see a doctor that specializes in NETs at Mayo in Phoenix. I was diagnosed in 8/22 with a PNET that spread primarily to my liver and bones. I have been living on chemo since. Are you seeing a NETs specialist?

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Mentor
Turkey, Volunteer Mentor | @tomrennie | 2 hours ago
In reply to @soonermimi "@tomrennie Hi I already have GERD, a small hiatal hernia and IBS. I am now experiencing..." + (show)
Profile picture for soonermimi @soonermimi

@tomrennie Hi
I already have GERD, a small
hiatal hernia and IBS. I am now experiencing a feeling like my stomach is in my throat and I get a little short of breath because of it. I also have a pain in the middle of my abdomen and the GERD is much worse.
I had endoscopy and the polyp was found and biopsied then.

Jump to this post

@soonermimi That all sounds rather unpleasant. Sorry you have to go through that, but I can unfortunately relate to most of what you are experiencing. When is your MRI scheduled?

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