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dianne2026 avatar

Finding out what I have.

Autoimmune Diseases | Last Active: Jul 15 6:04am | Replies (11)

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Profile picture for momac59 @momac59

10 years is long enough! Find a good Rheumatologist & and Endocrinologist which can be hard but that’s the key in getting a good diagnosis with the right tests which leads to the right treatment. I’m 67 & have had Lupus, Hashimotos & diabetes for 30 years. No picnic getting diagnosed back then; took 8 rough years. I was dismissed by many Drs. telling me I was just a busy Mom or just depressed. I learned over the years to advocate for myself, fire Doctors who would not listen & respect me & to learn about my disease. Now there is so much information but going to a reputable source is very important. Mayo Clinic & Cleveland Clinic is a good start.
Do a good search on Rheumatologist and Endocrinologist that are in your area. Read their backgrounds. See what other patients are saying through reviews. Teaching hospitals in my experience have many good specialists. And if you are close to any of the Mayo Clinic Hospitals or specialty clinics I would pursue that. They’re one of the only hospitals that were able to help me this last spring when I got so sick with a new autoimmune disease, GCA. I spent 2 weeks in the hospital at Mayo & they assured me I wasn’t going home until they could figure out what was wrong with me. And they did!
Good luck on your health journey ahead I hope you find answers soon. And remember, don’t let anyone, not a Dr. or even a well meaning family member ever make you feel like you’re an inconvenience. You deserve to be heard!

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Replies to "10 years is long enough! Find a good Rheumatologist & and Endocrinologist which can be hard..."

@momac59 Good for you !