I had a mastectomy January 1998. I developed lymphedema by April. It was mile but uncomfortable. I was advised to get a compression sleeve, which I did. The lymphedema persisted especially after a vacation to Hawaii in 1999. I found a LANA trained massage therapist immediately upon return. The first session produced profuse drainage of excessive amounts of fluid out of every orifice in my body: ears, nose, bladder, lungs for hours. Afterwards I began to feel human again. It was incredible. I followed with therapy massage every week for a year. It was very helpful.
In 2003, I had a recurrence which triggered more surgery and radiation. Radiation caused necrosis of the skin which was cracked and oozing. More advanced therapy with an OT brought healing and wearing compression sleeves. Thirteen years later, the fluid began building in my tissues again, more therapy with the same OT. I progressed to a pump and stronger compression sleeves. I continue the self-care daily with massage, FlexiTouch pump by Tactile Medical and custom compression sleeves. It is daily and necessary. I have been hospitalized three times with cellulitis. The first time, it became septic. I measure my success by staying out of the hospital. I fit this routine into every day. Sometimes, I feel it is the only thing I get done. I am advanced in age now, so it is still a win-win. The National Lymphedema Network is helpful with information about resources. God speed.