Here's an article that may assist you with your parents:
https://www.globallymealliance.org/blog/how-to-respond-to-but-you-dont-look-sick
Have you read about the "spoon therapy" and chronic illness?
The "Spoon Theory" is a famous metaphor created by Christine Miserandino, a lupus patient, to explain the daily reality of living with a chronic illness or invisible disability. It uses "spoons" as a visual unit of energy to show how every daily task requires a calculated, limited amount of effort.
While healthy people generally wake up with an unlimited supply of spoons to do whatever they want, people with chronic conditions start their day with a strictly counted, much smaller batch (e.g., 12 spoons).
The Math of Daily Life: Every basic task costs a spoon. Getting out of bed might cost one, taking a shower costs two, and getting dressed costs another. By the time a "spoonie" has prepared breakfast and brushed their teeth, they may have already used up a significant chunk of their daily energy.
The "Invisible" Struggle: The phrase "but you don't look sick" is hurtful because it ignores the exhausting mental math required to survive the day. Someone may look perfectly fine or put-together on the outside, but they have already made painful sacrifices—like choosing between eating dinner or taking a shower—just to get through the day.
No Reserve Tank: When your spoons are gone, they are gone. Pushing through means "borrowing" energy from the next day, which usually results in extreme fatigue or a severe flare-up of symptoms the following morning.
The theory provides a powerful way to reframe how people view disability, shifting the focus away from assumptions of laziness and toward the careful, necessary rationing of energy.
To read the original essay that started the community, check out The Spoon Theory by Christine Miserandino.
@luvpets15
Actually I have heard about Spoon Theory, I did an IOP and it was part of the skills taught. Personally , don't "subscribe" to S.T.. I talked to my parents about it since they are both Psychologists (my Dad has been one for 45 years) and both of them had never heard of it. They both googled it, and said it was ridiculous. I don't use it. But i know some people do use it and find it helpful. Now Im in alumni groups from the same practice and it never comes up. But that's why there are so many ideas/tools, what works for some people, won't for others. My best girlfriend has Fibro, and Motrin works better for her pain. I can't take Motrin too much cause it upsets my stomach. I was using Tylenol, until I found out too much of it makes your BP high. So now I'm gonna have to use it sporadically so my BP stays normal.
I'm looking at Fibro kind of the way I look at being Autistic, its a spectrum of symptoms/traits. Some therapies and meds will work for some people and some people have a whole other way that works for them.